😧 How long for this kind of life do I have?
N: I hope you will have another 20 years... at least
D: Don't be silly, you know what my question is. What did the people say I will live for?
N: Oh.. ok 9-18 months. So based on what they told us, you have 5 months to go. You'd better prove them wrong.
D: I believe I have at least 6 times 1 month.
N: Isn't it easier to say 6 months?
D: I guess so.... LOL
Let's see how we have travelled so far....
4 August 2011
MRI - brain tumour found
8 August 2011
11 August 2011
Confirmed GBM, we were told we had 9-18 months on average.
29 August 2011 - STARTED CHEMO-RADIOTHERAPY
9 November 2011 (3 months)
Scan - Unclear, residual from radiotherapy, brain swelling
17 November 2011 - STARTED TEMODAR CYCLE
11 January 2012 (5 months)
Scan - good, no regrowth
7 March 2012 (7 months)
Scan - discovered the regrowth, we were given:
- 2-3 months if he does nothing
- 6-9 months depends on chemo and response
10 April 2012 - STARTED CLINICAL TRIAL
10 May 2012 (9 months or 2 months after recurrent)
Scan - second tumour found, original tumour site looked better.
6 June 2012 (10 months or 3 months after recurrent)
Scan - second tumour had grown bigger, original tumour site appeared to be stable.
29 June 2012 - STARTED AVASTIN
3 August 2012 (12 months or 5 months after recurrent)
Scan - second tumour had grown bigger, original tumour site looked good.
10 August 2012 - STARTED AVASTIN + CARBOPLATIN
17 September 2012 (13 months or 6 months after recurrent)
Scan - second tumour is now twice the size within 6 weeks, original tumour site is fine. No more chemo. Radiotherapy and surgery aren't an option.
Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.