😧 How long for this kind of life do I have?
N: I hope you will have another 20 years... at least
D: Don't be silly, you know what my question is. What did the people say I will live for?
N: Oh.. ok 9-18 months. So based on what they told us, you have 5 months to go. You'd better prove them wrong.
D: I believe I have at least 6 times 1 month.
N: Isn't it easier to say 6 months?
D: I guess so.... LOL
Let's see how we have travelled so far....
4 August 2011
MRI - brain tumour found
8 August 2011
SURGERY
11 August 2011
Confirmed GBM, we were told we had 9-18 months on average.
29 August 2011 - STARTED CHEMO-RADIOTHERAPY
9 November 2011 (3 months)
Scan - Unclear, residual from radiotherapy, brain swelling
17 November 2011 - STARTED TEMODAR CYCLE
11 January 2012 (5 months)
Scan - good, no regrowth
7 March 2012 (7 months)
Scan - discovered the regrowth, we were given:
- 2-3 months if he does nothing
- 6-9 months depends on chemo and response
10 April 2012 - STARTED CLINICAL TRIAL
10 May 2012 (9 months or 2 months after recurrent)
Scan - second tumour found, original tumour site looked better.
6 June 2012 (10 months or 3 months after recurrent)
Scan - second tumour had grown bigger, original tumour site appeared to be stable.
29 June 2012 - STARTED AVASTIN
3 August 2012 (12 months or 5 months after recurrent)
Scan - second tumour had grown bigger, original tumour site looked good.
10 August 2012 - STARTED AVASTIN + CARBOPLATIN
17 September 2012 (13 months or 6 months after recurrent)
Scan - second tumour is now twice the size within 6 weeks, original tumour site is fine. No more chemo. Radiotherapy and surgery aren't an option.
