Well, while it's been a tough few days after we heard the bad news, I could still manage and live my life. I could wake up earlier than usual to attended and 'participate' a full day workshop on Thursday with tired eyes and a mild hangover. I actually had swollen eyes from crying but a good bag of frozen peas did the job! I left my partner on his own on Thursday night and went to a friend's party. Being a cheap drunk, I had another mild hangover the next day but could still do some work on Friday. I emailed a Prof. at RMH and got my partner a speedy appointment for 2nd opinion next Tuesday. I rearranged an appointment with the oncologist as he forgot that this Monday is a public holiday but still booked us in to see him and possibly get my partner starts on new chemo. I rang Roche to find out how much we may have to pay for Avastin. Ouch, it could be around $20,000! if my partner responses well. If not, well, 3-5grand for the 1st dose to test it out. I rang the hospital to get MRI images CD made but haven't picked them up yet. I emailed Dr Helen Wheeler to get her advice as she's in Sydney and am grateful for her prompt responses. I emailed another doctor at RMH about a Clinical trial which is about to open, haven't heard back from her yet. I emailed Dr Ben Williams, a long time survivor of GBM, to get his advice and he kindly responded to my email. I spent this morning scanning Ben's document and took note of relevant researches on recurrent GBM treatment options so that I can discuss with the doctors. Ben did such a great job with his document which is pretty much like a scientific paper with all the references. I wonder if any oncologist ever read his document. At least, it's a great starting point for me. I remember a friend said "While there's life, there's hope". I also searched its origin. While there's life, there's hope. Cicero, Ad Atticum Roman author, orator, & politician (106 BC - 43 BC) And... while I'm doing all this, my partner has spent most of his time in bed @_@ I'd better go and annoy him!
4 Comments
Contributor
Keep up the good work, you will never regret pulling out all the stops in the care of your partner. My wife was on Avastin as part of her chemo for 2 yrs at no cost, I wonder how yours is that mind boggling price. It just adds to the stress. When the going gets tough, the tough get going. Author ?, but it sounds good. wombat4
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Contributor
Hi wombat, It sounds to me that your partner had cancer so it must be hard for him. Otherwise and surprised I don't understand you. Glenys
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Contributor
Hi wombat, It sounds to me that your partner had cancer so it must be hard for him. Otherwise and surprised I don't understand you. Glenys
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Contributor
The post just means keep going, as best you can
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