Just wondering if anyone knows anything about the internal scarring which can occur after radiation? Specifically, how long after radiation finishes can it occur and what does it feel like? My area of radiation was the top of my leg. Thanks, Kim
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SILLY
Super Contributor
I suggest you write it down to ask the doctor you see next .If that doctor doesn't know you may have to wait till you see your rad/onc.
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pimbok
Contributor
Thanks Silly. I actually brought my oncologist's visit forward, spoke to him about the stiffness and pain and he said it was either scarring or tumor. I have since had a PET scan and will have an MRI on Friday. I see my oncologist for the results on Tuesday. I guess I'm a little impatient and can't find much on the net. Will just have to wait it out though.
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geneandjudy
Not applicable
I had cervical cancer in 1983 and just two years ago discovered scarring from radiation on the walls of my bladder. The scarring was also found in my colon, creating blockage. I'll be going to Mayo in January for evaluation and testing, to be followed by bladder removal and some kind of colo/rectal surgery, possibly a colostomy, both being done at the same time. I had no symptoms, but this was found by abnormal blood test results. So in answer to your question, it can take a long time to show up. Doctors are stumped why it took so long for mine. Guess I'm just fortunate that it did. I haven't found much on the internet either. I wish you good luck in your testing.
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pimbok
Contributor
Thanks Geneandjudy. What a bummer to have to go through all that. What's Mayo? Good luck with it all and thanks for letting me know. It's nice to know someone who understands. Will be thinking of you in January. Keep us posted. Kim
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Susan1234
Occasional Visitor

I had bartholin gland cancer back in 1995 that had spread to vulva area and my lymph node on the right side. After major surgery I had seven weeks of radiotherapy.  I have been lucky up to now with no further issues.  Eighteen months ago I started to have problems walking up stairs and bending down on my right side, I had a CT can which showed scarring? My GP said or that's nothing. Now eighteen months later I am having the same issues, all over my whole pelvic area, so bending down to pick up things or even walking up stairs is causing me major issues with pain. My Gyno told me the other day that I need to see a Pain specialist as there is no treatment for the scarring and that it is only going to get worse.  Has anyone else had these issues and have you have can you tell me how you coped. Susan

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