After much yelling at doctors for an answer - I found out yesterday the name of the insidious disease my Darling is suffering from - "linitis plastica" otherwise known as "Leather Bottle Stomach" - It seems it is so rare here in Australia they don't know how to treat it and so he will be a guinea pig for their fumbling and bumbling.
Bless his soul- he doesn't have a chance when THEY don't even know how to look after him.... 😞