Hello everyone. My name is Ruairi and i am a 34 year old male living in Northern Suburbs in Melbourne. I was recently diagnosed with Non Hodgkins Follicular Lymphoma/Stage 4a and my bone marrow is involved as well. I underwent my first round of Chemotherapy yesterday and it was certainly a long day! About 2 months ago i was shaving to go to work and i noticed a lump on the upper left side of my neck. I didn't like the look of it and so i went to my local GP who referred me to have an ultra sound and bloodwork done. Bloodwork came back clear however the ultrasound showed there was a 3.8cm lymph node in my neck. I then had a fine needle biopsy done and then a CT scan. I should mention that i married my beautiful wife 6 weeks ago and all of this was going on around it. I had the CT scan done the day before our wedding and then i had a surgical biopsy done the Tuesday after so not a long honeymoon! It did not impact on our big day though as we were both determined to fully enjoy it and we had the most amazingly fun wedding day!! When i got the results of the surgical biopsy they told me i had Follicular Lymphoma STage 4a and the B Cell type. It was very scary for us both to say the least and a major shock. One of the ironies of all this is that i had absolutely no symptoms prior to spotting the lump on my neck. It is bizarre to be told that your sick when you don't feel sick! So i started my chemo yesterday. My wife and i went in at 8.30am and we left at 5.30pm so it was a long tiring day, with a lot of information given to us and obviously the treatment as well. I got through it all quite well, apart from a reaction to Rituximab, where i got a rash on my face but my wife a.k.a CEO as she likes to call herself) spotted it immediately and alerted the nurses. They gave me some fenurgin and it went within 15 mins. My next treatment is scheduled for 3 weeks time and should only go for about 3 hours. I guess i am writing on here to touch base with other people in a similar situation to myself. Also to let people know that starting chemo is not as daunting as it sounds. I was quite nervous beforehand but overall i was relatively comfortable yesterday, i had my normal appetite and apart from the sitting which wasn't too bad as my wife was with me, it was not nearly as frightening as i thought it might be. As for everyone starting chemo, it is unchartered territory for us but i feel good in general and as long as i don't feel sick i am not going to act it! Would love to hear back from other people and if i can offer any of my experiences i would be more than happy to.
Welcome Ruairi! Glad to hear your first chemo experience was an okay one.....And congratulations on your wedding! My darling husband has cancer and I am totally his CEO- so I am glad someone else calls herself that too! This is a great place to check in and share experiences and wisdom- and fears and struggles.....Good luck with your treatment! PA
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Hi PA thanks for the post! Well i had a good night's sleep last night and i am feeling pretty good today. One thing that is encouraging me so far is the fact that i still have a good appetite as you hear so many different stories about how people react to Chemo. I know that i have my struggles ahead but whilst i am feeling good i am going to enjoy that feeling. Yesterday was a tough day for me emotionally though as i my brain was going a 100 Miles an hour with all kinds of thoughts so i just need to chill out a bit and take one day at a time... I really appreciate people taking time to read my blog and for any replies... Ruairi
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Hi Ruairi My name is Dina and I was diagnosed around the same time as you with FNHL stage 3A. I am about to have my fourth dose of R-Chop on Thursday and like you did not feel too bad with the chemo. Like you, I also had no side effects until one day after completing a half-marathon my stomach became quite distended. After seeing a doctor and having various tests I was diagnosed. I hope you continue to experience no side-effects for the future. Good luck. Dina
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Ditto welcome Ruairi, even though I would like to say that on another site and not on this one,lol. Congrats on your wedding and look forward to reading your positive blogs good on you both. Dave
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