I recently lost my partner of two years to a brain tumor it was a very quick passing without me being able to talk to him or anything i still have moments where i get lost in myself and feel i have no where else to turn.
Hi Shelly88,
I'm glad you have found this site and good for you in taking the first step by posting your blog. I know it's hard.
I am sorry for the loss of your partner.
Just a bit of background for you on my story.
My husband was diagnosed with oesophageal cancer as his primary and secondaries in the abdomen back in February 2009. He had a secondary tumour on the brain diagnosed in December 2009. The tumour on the brain was not operable and he underwent 10 sessions of full brain radiotherapy, with his last session on christmas eve.
The day after Mother's day, he went downhill dramatically (just a few hours between when he was 'normal' to needing lots of help to just sit himself up). Over a 3 week period he progressively deteriorated and he passed on 30th May in our home.
Use this site to share your feelings, feel free to be honest, no-one will judge you here. People care, people understand, people will listen.
Kind regards
Mrs Elton
Thanks it just seems hard to talk to family.
Just a little background on my case.
My partner was diagnosed with a brain tumor when he was only 14 i dont know all the details about it from then till hes 20. I knew about his disease before i got with him in december of 2007. He hada bubbly personality and never let his tumor bet him he always wanted to carry on with life and never let it get him down. He lost some mobilty in his left side but again he never let it get the better of him.
He's tumor had grown throughout 2009 and the pressure was cause his brain to push into his neck and spine. In August of 09 we had a room built on the first floor of his parents house where unfortunately a support breaker could not be moved this is where his story ends he hit his head cause the pressure in his brain to pretty much slowly put him into a coma like state. He was rushed to Mater in Brisbane where he was taken to palative care where within 24 hours he had drifted off to the land of nod never to return.
Oh Shelly88 that must have been such a shock to you and the family.
So many things to deal with in such a short space of time.
It is natural to find it hard to talk with family. What support do you have, or have you been doing it all on your own?
Mrs Elton I have my family as well as my partners and i am able to talk with i just feel sometimes i need to talk with someone else who has experienced this traumatic experience and someone that doesnt know me or my situation cause i see that some people kinda of say what they want me to hear. I would like to hear other peoples experiences.
Hi Shelley88
My husband was diagnosed in Mar 09 with a grade 4 brain tumour (GBM) which they removed at the time. We were told on 10 Nov that there was a recurrence. On 17 Nov he was hospitalised aand moved to palliative care on 22 Nov and although he put up a brave fight we lost him on 4 Dec. He lost mobility on his left as well and from the time he he was hospitalised he lost speech. From the recurrence or news of the recurrence he lasted 3 weeks. I know your loss was more sudden and for that I am very sorry.
Its been 6 months now but my wounds are still raw. Talking to family doesn't quite work for me because to them he was a son or son-in-law and to me he was a soulmate, my best friend, my partner in crime and the father of our beautiful children. They can't understand what its like to lose that.
I am learning slowly to let him go. I have been dealing with the day to day without really dealing with the letting go.
Here if you need to talk.
Regards
Sangeeta
hi i am new to this site.
i just lost my husband to a grade 4 brain tumor he was only 24 and we have 2 amazing children. he was diagnosed in nov 2009 with the tumor and had surgery. they removed 95% of it. we took our family to live in perth for 2 months while he recieved the radiation treatment as well as chemo.
we returned home and i planned our wedding. we were married on 3rd april 2010 and it was the most amazing day of our lives.
shortly after he became more and more weak in his right side. and from there went down hill very very quickly. we got flown down to perth again and were told that the original tumor had grown back and another had grown next to the brain stem. they told us that it would be a risky operation and that if they did it it could do more damage than good and wouldnt take any of the symptoms away or give him any more time.so from there they told us we had weeks to go.
so we flew home and got him set up at home though palliative care. he was home for about a week and he pasted with myself his kids ,his mum and dad and his sister all at home with him on the 26th of may 2010. it will be 4 weeks on on wed and i am now starting to not cope very well. i was so strong though it all but now starting to lose my grip.
i feel for any one who has gone though anything like this.
i have thrown myself into organising a team for dry july to raise money for the cancer ward in the hospital that we spent so much time in. which has helped me focus on something other than my grief.
Lexy,
My sincere condolences to you for the loss of your husband.
I understand your comment 'starting to lose my grip', my husband passed away on 30th May 2010 (three weeks today) and I am just starting to feel that the strength I had whilst I was caring for him is starting to disappear. The new reality of life without him feels very overwhelming.
I admire your fundraising efforts.
Peace and strength to you and your precious children.
regards,
Mrs Elton
