on the 21st of november at 7.53pm by beloved husband passed away from this hideous disease . i slept by his bedside in hospital watching him in excrutiating pain. its so not fair and cruel . i want to scream and cry but it wont come . but he was a hero to us ... he went on drug trials not to really help him but to others and he had a donation box at his funeral to donate to gist alliance ... to all that are going thru this journey with gist tumours if you need to talk please message me xx with love jill xxx