Hi Mango,
We live in the tropics too. We travel to Brisbane for treatment which adds to the challenge of trying to lead a normal life. We now spend half our time in Brisbane - our son's there - and half our time here by the beach.
We had to desert our year 12 child last year! She managed to do well and is on a gap year.
We have another year 12 child this year. I only hope my husband survives till the end of the year.
As far as hope goes, I'm a hopeful realist. I have friends who have lost parents to GBM, and a colleague died also.
I discovered this site when my husband was first diagnosed. There was another very active froup of GBM carers. As I followed their plight, I understood the reality of this diagnosis...
I tried to return to work after radiotherapy, but we always had to make emergency dashes back to Brisbane. Recurrence, second craniotomy, cystic build up post op, uncontrollable seizures....
Suffice to say, I've taken leave from work. We had to cancel our planned month in Europe (we booked it 2 weeks prior to his diagnosis) once the seizures started. It was stressful enough trying to get him down to Brisbane. It would have been waaaay to scary to go overseas.
On Good Friday we ended up in hospital - my husband coukdn't walk. He has gout! Wonderful side effect from steroid induced fat tummy I guess.
I wish you all the best on this rocky journey.