1232michelle,
My husband was working as a bus driver when one morning slept in and had to be reminded about work, once there the staff thought he was having a stroke due to dropped face and sent him to hospital. The next day he was airlifted to PA and the specialist came by and informed him he would no longer be allowed to work. It was a blow as we were starting to build the house and required the monies. I too had to resign due to the care my husband would require.
It has been very interesting since June last year.
With GBM it is better to be diagnosed as a younger person as it is indicated that the older a person the less chance of long term survival. Health also plays an important part, if the person is healthy and had good brain function prior to diagnoses then a high success of survival but in saying that all specialists will indicate that as everybody is different and the brain so complex they cannot really give lenght of survival rates.
At first when working with someone who is experiencing loss of brain function it can be very frustrating for both the person and those who are providing the care. It will take time for both parties to come to terms with the situation (it took me a few months to come to terms with the situation and how to work with my husband without taking away to much of his independence), I was lucky in a small aspect due to having worked for 11 years in the disability sector, which I could use when working with my husband.
I have found by obtaining as much information from doctors, internet, forums have assisted me in understanding the situation. Ask questions no matter how silly you think they are, as it may be that they are not.
With my husband the tumour played around with his blood pressure, so we purchased a machine to monitor the blood pressure which has been a fantastic help for both doctors and specialists. I also have started a diary (at first due to medical issues as advised by specialists) which I write how the day was in both medical and personal areas, I write the stories my husband tells about his life, about our daily lives, and in time I can edit and compile the information and give to children and grandchildren as a legacy of his life. Also take lots of photos when I can, again for legacy for children and grandchildren.
The most important part of this all is to show love, support and enjoy life as much as possible with what time is left.