Last year on the 17th of September my Boy friend/Partner/Soul Mate had a routine colonoscopy because he is over 50. On the 20th of September we received the results. Attenuated Familial Adenomatous Polyposis. He had hundreds of polyps and they isolated a rectal carcinoma. They said he had twelve months from that particular carcinoma but were hopeful they could re-sect the area post biopsy removal.The drs wanted to take everything, his colon, rectum and lymph nodes. He wouldnt go through with it so another approach was taken and one month later he had his colon removed and had an internal ilium created, so no bag thankfully. The carcinoma site was not resected as they said it was biopsied so well it appeared to be gone, that time will tell if it would return.
Post surgery all test were clear and it appeared we had got it early enough for a complete cure. January his colonoscopy was clear so all was looking fantastic!
Until two weeks go. He had a PET scan that showed Hot Spots.
He tells me to just drop it. I am suddenly not allowed to speak to the drs. He tells me the Hot Spots are from the polypectomy 5 months ago. He wont talk about it. He says he is just fine, that its to be expected and all normal.
My sister is an oncology nurse. She tells me its highly unlikely that the Hot Spots are from a surgery that occurred over 5 months ago, my GP has said the same thing.
He did tell me there would be another 'round table' meeting of the Drs to assess the results which would have happened by now but he has not updated me. If I bring it up he says to drop it.
I just am so lost and scared. I told him that if the Dr said he is all clear then the Dr can tell me that himself and then I can be reassured. He wont let me talk to the Dr. That just makes me more afraid.
He is talking like its all normal. I cant sleep, I dont know how to handle this.
If he is all clear then why wont he let the Dr reassure me. If he is not then why is he acting like its all ok and shutting me out?
I feel like I am going crazy.
Any Advice would be greatly appreciated
Poss