Adenoid cystic carcinoma

Occasional Contributor

Adenoid cystic carcinoma

Hi, just new to this site received a diagnosis of ACC last week after 5 years of getting the run around with my lump, 2 biopsys, first one benign, 2nd inconclusive finally lost it and asked for surgery. Went into surgery under the impression nothing much to worry about that is what the ENT said.  Post surgery 4 days and received a phone call ACC. My world has turned up side down, I have small children. Trying to stay positive and your posts are so lifting and it gives me hope. My tumor was 15mm so not big, do not have any histology details yet but will get them. MRI next week, them 6 weeks RT. I am so scared it sounds hideous 😥

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Re: Adenoid cystic carcinoma

Hello!

 

Welcome to the forums, ACC can be difficult to deal with....if you don't mind me asking how are you currently??

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