Hey, I have finished my treatment this year for Anaplastic astrocytoma brain tumour stage 3.
After surgery, I was able to be put on a trial which involved the standard radiation (about 6 1/2 weeks ) and then 12 months of chemotherapy, which consisted of temezolomide 5 days out of every 28 for the 12 rounds = 12 months. I had my first clear scan in December 2015 and just had a follow up earlier this week and still no re-occurance.
I found it's a hard decision on what to do with so many things out there, I trusted the doctors etc at the hospital and feel that if it does re-occur, then I would consider other therapies.
Hi. I was diagnosed with Glioblastoma last Monday after the results came back from the tumor that Royal Brisbane Hospital took out earlier last week. Looks like the op went OK. I'm home now, waiting....
I'll go onto chemo (Temozolomide) and radiation as soon as they are ready. I've got interviews next week with the radio and chemo oncologists and I guess it all starts soon after that. I had the radio initial interview on Monday so I know it's 6 weeks of Mon-Fri radio (30 sessions). With the Chemo I don't know the regime yet.
I'm scared out of my head and working to deal with it all + starting to get superannuation and work leave sorted.
I never considered myself mentally strong or physically brave so I'm wondering what the whole treatment process will look like. My wife is my primary carer and I am concerned that this will be too much for her as our kids are in high school and we were flat out keeping up with everything before all this started.
Sorry that the above is a bit long but I found this site and wanted to learn from others' experiences.
i am 45 years old and found out 6 months ago after a seizure that I have stage 4 GBM
i had the tumor removed from the right temporal lobe. I was told that I would probably be paralyzed on my left side. Surgery went well and I came out with numbness below my left knee but still able to walk.
3 weeks after surgery I started the 6 week radiotherapy and chemo course.
My movement was getting worse and after 4 weeks I could hardly walk. I was also having focal seizures in my shoulder and hip.
The Monday after radio had finished I had a tonic seizure, fell and hit my head. I had a CT scan done which just showed a lot of swelling.
Onthe Thursday after I saw my general physician and she put me in the hospital the next day for a MRI as she said I wasn’t right
The MRI showed the tumour had returned already after around 11 weeks
i had a second removal with the neurosurgeon believing I would be paralyzed on my left side.
i came out not being paralyzed but it was a lot slower recovery (but after 12 weeks I am back to what I was after the first removal)
After 3 weeks I then started the 5/23 day double dose of chemo. I get tired towards the end of the week but other than that I have no side effects.
My 6 week MRI scan was clear
Today I have a 12 week MRI done so once again hoping it to s clear or that the chemo is keeping it controlled for the time being.
i have 4 doctors in my team (neurosurgeon, chemo oncologist, general physician, neurologist)who are all fantastic and listen to what my wife and I tell them what is going on.
The neurologist has helped to get my seizure drugs right and I have not had any since the second removal.
I hope you are doing well with your treatment
Sorry if I dribbled on
i am in a similar situation, I have a brain tumour, had most removed via an awake surgery in may. I have had radiation therapy for 6 weeks as well as chemotherapy pills ( temozolomide). I will finish my chemo in march next year. I take 5 mg of cannabis oil most days and have not been sick since I started doing so, the first month or so of chemo and radiation was pretty rough for me, so that's when I started taking the oil. Honestly if you can get it, it will help, I had no energy at all and was sick after most treatments until I started taking the oil... I can't believe this isn't legal, it works wonders. Not to mention the other benefits and conditions it treats/cures. (Anyway I could rant on about that for hours). I hope everything goes as well as possible for you. If you have any questions don't hesitate to ask me... ps my hair is fully grown back now after the radiation, so don't stress too much about losing it, it will come back, it's been 4 months since I finished my radiation. Thanks
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