Hi, 6 months ago I was a fit healthy 31 year old carpenter, I was having the most successful year at work I've had, and generally in a state of happiness and excitement at the life I was living. Then out of nowhere, I woke on a Sunday morning in extreme pain in my legs and head. It got to Wednesday and I went to the doctors, they were baffled and sent me for every test possible.. After a month or so of tests we found the tumour in my frontal lobe. The neurosurgeon was confident he could remove the majority in surgery, but I'd have to be AWAKE... ( so they could ask me to move my hand, arm etc). To myself I thought "This should be interesting". The surgery went well and they removed 90% of the tumour. I remember a lot of the surgery and think about it often. I also remember having a seizure on the operating table... Fast forward 2 months and I've found out that it's a grade 3 astrocytoma. I am currently undergoing radiation and chemotherapy at ONJ centre, the staff are all fantastic and very helpful. I am wondering if anyone out there has had leg pain associated with this type of tumour, as the docs are honestly baffled.. My legs feel so weak and like I've torn both hamstrings and calf muscles, I can only walk for 20 minutes or so before having to stop.Hopefully it's not something else causing this pain... Anyway I know that was all a bit long winded but I'd like to hear other people's experiences.. Thanks for reading
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Hi I have just been diagnosed with a 25mm low grade glioma in my right frontal lobe. I am currently waiting on consultation with a neurosurgeon and have been left hanging with little to no information about the tumour. I have headaches constantly and pain in my legs. I am hoping someone can give me an idea of treatment options or if anyone has had a similar experience, the waiting to know is consuming my every thought, it's only been two weeks but I still know nothing. Thanks
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Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.