Hi, I have brain cancer and have been off work for 1 1/2 years, Centrelink has refused me 3 times. The first time the lady interviewing me said her son had a brain tumour as well, he had benefits paid.. but I wasn’t able to even get sickness allowance. The second time I applied the guy said it would be easier if I had never had a job and was on the dole, then they would pay... Absolute outrage of a system! Last week my Uber driver told me his entire family was on benefits and in gov funded housing because they were new to the country!!!
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Hi Nath250, yes I understand Drs would find no connection, mine did too, if you look on the internet under wood dust exposure, I’m nit sure but I feel something needs to trigger the cancers in us and we will never know. there are so many cancers out there now and something is going wrong somewhere. Have to keep on keeping on, I have cancer in my bone marrow, and the pain down the front of my legs something ines is so awful . I can well imagine what you are going through, it’s like I had years ago, skin splits if your familiar with them. It’s weird The fatigue is so aweful too and I feel it in my legs, like the old saying goes on my last legs. Dragging myself around, but I keep upright most days..lol resting helps also a hot bath. i do pet sitting and get a nice hot bath at times,so that’s a good thing. It’s weird as the dogs sniff at my legs heaps, I’m sure they can smell cancer. Im due to see my cancer Dr soon and have just had the blood tests two weeks before I go to see how my cancer levels are. Dr said last time my levels are up to where I may need treatment soon, I take a product called Gumby Gumby check it out, it may be helping me but I don’t know yet will see at my next visit if the markers go down I will be very happy. i got mine online , it’s easy to order and is said to help also if your on chemo etc, it doesn’t react or stop any other meds working you may be taking. thanks for the reply. karen smily2
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That sounds like a tough situation for you.
I would recommend speaking with the Cancer Council Information and Support consultants on 131120 as they have access to programs that may be able to assist you financially at this time. This service is open 9am-5pm Monday to Friday.
Cancer Council also provides some pro bono (no cost) legal services, and applications for these can be arranged through 131120.
The social worker at your treating hospital may also be able to advise and support you to access community financial support programs in your area.
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Hello @Nath250 and welcome!
I am sorry to hear of what you are going through right now. Are you able to contact your neurosurgeon or his office and ask for some clarification or some information? Let them know what you are experiencing with the headaches and pain.
We have a publication that I believe will help you immensely on understanding brain tumours and the different treatments available. It also contains sections on looking after yourself and where you can seek support. You can download this booklet in PDF format here. If you'd like a hard copy, just send me a private message and I will organise that to be sent out to you ASAP.
There is also an opportunity I believe for you with our Connect program, where you could be matched with one of our volunteers who has undergone the same or similar experience as your own for a series of one-to-one chats over the phone. If you're interested in finding out a little more about Connect or just want to chat to someone who can help unravel things a little bit for you, our 13 11 20 team consists of health professionals who are available 9-5, Monday to Friday. I would highly recommend giving the team a call and at least discussing your symptoms with them.
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Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.