Hi im new to the site and am wanting to know, ask for some help. I was diagnosed with Renal cell carcenoma which has moved into my bones - causes lots of pain and into my lungs and spot on my brain.......i dont want that to sound like i'm feeling sorry for myself but i am having troubles dealing with it. I am yet to start immunotherapy but that will be next week, i actually came online to see if there was a number to call to speak to someone so i dont know if this is the roght way of doing it. There are alot of blogs i started to read with people with different types and dealing with different issue's, i was looking for just some comfort of like minded people living through treatment and what i can expect...im crying as i type...is this normal.
Hi Darren71, sorry your symptoms are so bad. We’re all different in our responses and some people can stay positive most of the time while some of us have anxiety and cry often. That’s how it was for me and I just had to go with it. I had a very supportive husband and daughter who listened and comforted. Every day was different. If you’re in pain it makes you more emotional too. Once you start the treatment hopefully you feel better in time. Hope you have lots of kind people around you. 🙏💕 Linda G
Hi Darren71, that’s great you got help from lifeline. Yes you are normal and it’s good you can be real about your feelings. All the best for your treatment. I’ll keep you in my prayers 🙏. LindaG
I hope all is well with you and your family today.
Your post is very moving. I respect you for keeping it real . I wish I could be more like you when it comes to sharing how I really feel.
I always suffer in silence because I don't show real emotions. I have no problem showing love to my wife and family but I struggle with staying it. I'm working hard to improve it.
Please keep us updated on how things are going for you and your family.
Hi Darren71, sorry you’re having a bad day. As you say, some days are just like that. I think we would all understand the ups and downs with your emotions. Hope tomorrow is better. Hope your level of pain is under control. Will still keep you in my prayers 🙏💕. Linda G
Sorry to hear about you having a tough day my friend.
Is it because of pain or are you struggling mentally?
Do you have any hobbies that you like or maybe you have one you would like to start
Hey Darren. Looks like you are the same age as me. I have RCC too. Stage IV. I’m 18 months in. Trust me, it gets easier to accept. There’s a forum called Smart Patients, with a sub forum called Kidney Cancer. I get a lot of comfort from being on there. Some people have been battling stage IV RCC for 15+ years with the various different treatments which re available now. It’s more encouraging than the 5 year prognosis you will see when you hit google. Never search cancer on google or Facebook. That will definitely get you depressed.
Stay strong my friend. You will have years ahead of you put the path will be challenging.
Be part of this supportive community