Thanks everyone for your support so far, it's so helpful to know that I'm not alone.
I saw the haematologist yesterday, and had loads of blood tests. Next week I'm having a bone marrow biopsy, PET scan and heart (gate?) test. Then the doctor will ring me at the end of the week to let me know which treatment option I will be having. It will either be radiation therapy only, or chemo (RCHOP) then radiation.
I know I will have more waiting ahead of me, but don't feel so bad about it now. It was worse before as I had no real diagnosis, no appointments to see anyone. Although I still don't have an exact diagnosis, hopefully the tests next week will give more information, and if they don't there will still be a treatment plan.
Hope everyone else is doing well, Sue