peripheral neuropathy

Super Contributor

Re: peripheral neuropathy

Hi Ron Shame it didn't work for you. I am somewhat hopeful in my case it will be ok. It is to get some saliva happening again, or at least try for some. On a visit to the dentist he actually pushed rather hard on this particular spot and I had saliva for a short time. I can do that myself but am hoping that acupuncture might just stimulate it to work a little bit better than it currently does. :) Might be worth a try at least :) Julie
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Contributor

Re: peripheral neuropathy

Certainly worth a go Julie. Best of luck with it ,I haope it works for you,Ron.
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Super Contributor

Re: peripheral neuropathy

Thanks Ron, can't hurt to try I reckon 🙂
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Occasional Contributor

Re: peripheral neuropathy

Hi jules2 and Ron I have tried both acupuncture and massage therapy but didn't get much relief It would also seem that any pain killing creams work on the installation cells that we no longer have I think the princes that could feel the pea through 10 mattresses had the same thing in her back as we have Hope it's not to bad or at least sometimes Ian
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Super Contributor

Re: peripheral neuropathy

Hi Ian Hope yours isn't too bad either!! It can make life difficult and impact greatly in such a way as to make the new normal vastly different from what was previously normal. Julie
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New Contributor

Re: peripheral neuropathy

Just looking at what you're describing, your symptoms seem identical to those that I am having but mine is a definite cervical spine issue so it may be worthwhile having regular anatomical causes ruled out before blaming the treatment. I could be way of the mark but it seems to coincidental BTW the initial treatment for my problem was Endep with the advice that it may make me drowsy... well all the side effects worked but none of the desired....
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Occasional Contributor

Re: peripheral neuropathy

Hi everyone, haven't been on the forum for quite long time and now look, we are done with cancer (fingers cross, I'm 13 months after)and there's been neuropathy to deal with :( My oncologist put me on Gabapentin couple weeks ago but I stopped taking them few days ago. I did not feel any difference to my pain and burning in my feet but made me drowsy and who knows what else on long track 😞 and after reading your experiences I'm even more sure that I'm not going to take anything else... Keeping still and warm does the best for my feet but there is no way to be still all the time and warm 'just right' either. So????? Wish you all best of luck with all...
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Occasional Contributor

Re: peripheral neuropathy

Bamboo Socks ! I found a store that sells bamboo socks in hurstbridge VIC and they are the most comfortable socks I have , I now have three pairs and at $10 each they are not to expensive . If you cant find an outlet near you the shop is called working clobber www.workinclobber.elocal.com.au they maybe available on line . Try here http://www.bamboovillage.com.au/ Also I use Difflam extra strength gel on my feet a few times each day , it doesn't stop the nerve pain but it helps with reducing any pain in the areas close to damaged areas which helps a bit when I have to wear shoes all day at work .
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Contributor

Re: peripheral neuropathy

I had a particularly bad flare whilst taking methotrexate for arthritis and kidney disease. I went to my rheumatologist and he checked his records. I reported similar problems the first time I was on mtx. He sent me to a neurologist who did nerve conductivity tests. He dxed moderate to severe sensori-motor peripheral neuropathy. He could give me no cause or any help for it. Ron.
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Not applicable

Re: peripheral neuropathy

Yes i am experiencing it very badly. I finished oxaliplatin august 2012 and still have it badly. I tried a mild dose of a drug called I think neurontin but not much help and then Lyrica which did help but had bad side effects and I stopped. I find walking very tiring and gives me back ache and also muscle aches in my arms. Am going to a neuropathy specialist to see what else there is.
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