September 2016
I have just been given the devastating news on Wednesday that I have a precancerous syst in my pancreas and that I need a wipples op or a cancer will develop , after heading to the doctors with lower back pain in November 2015 .
From what I have found out so far it's one of the most dangerous operations anyone can have and recovery is very tough , the surgine haven't ruled out founding cancer in the syst after it is removed or that has spread to the rest of the pancreas .
I have survived colon cancer op and chiro 6 years ago but now this sounds much worst than that and that we pretty dam owful . I also have PTSD from the BlackSaturday firestorm as was a first response firefighter in the king lake area.
I'm looking to talk to anyone who has had the wipples op and had no cancer found in the post op biopsy , where should be as many people around who have not had cancer after the op as who has had it but I Im finding it hard to locate any . The surgery has said I have a 85% chance there is no cancer . So that should mean that there are more people who have had the surgery and not had cancer right ?
Also what can I do to help my family deal with this second cancer ?
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September 2016
Here’s what to eat before and after surgery
I fund this website today it may help ,
Basically home made bone soup ,
anti-oxidant rich foods -
Yogurt
Kefir (both dairy and water)
Apple cider vinegar or other traditionally fermented vinegars
Naturally fermented vegetables; sauerkraut, kimchee
Fermented beverages; beet kvass, kombucha
Fermented bean and legumes
Naturally fermented chutneys and salsas
Very I portain to drink filtered water it seems
Enter healthy-eating-before-after-surgery/
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December 2013
Hi lollylaw
Welcome to the "hot sandy beach walkers club "
I just thought up this name as I read your post
As the best way I explain what it feels like is walking on a hot sandy beach and the sand gets between your toes so it it burning more that just the souls of your feet .
If you haven't walked on a hot sandy beach before its just like the peripheral neuropathy , only difference is we can't put on thongs / shoes to stop the pain and we will walk on this beach everyday all day .
the only relief is sitting with your feet hanging in the air not touching anything .
I had my three and a half year colonoscopy in November but had to wait a month to get the result , the day before Christmas and I was all clear but it was a very long wait . there was a mix up it the appointment times and I need to do a blood test as well as the colonoscopy .
When i told the doc I was unhappy about the delay ( normally its 2 weeks and even that is s long 2 weeks ) he said he wasn't worried but he didn't have the cancer .
So when you are feeling the pain the most , close your eyes and image you are walking on a hot sandy beach on an tropical island with a loverly sunset . it will not help but you will see us walking with you .
Happy new year
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October 2013
Bamboo Socks !
I found a store that sells bamboo socks in hurstbridge VIC and they are the most comfortable socks I have , I now have three pairs and at $10 each they are not to expensive .
If you cant find an outlet near you the shop is called working clobber www.workinclobber.elocal.com.au they maybe available on line . Try here http://www.bamboovillage.com.au/
Also I use Difflam extra strength gel on my feet a few times each day , it doesn't stop the nerve pain but it helps with reducing any pain in the areas close to damaged areas which helps a bit when I have to wear shoes all day at work .
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October 2012
Hi jules2 and Ron
I have tried both acupuncture and massage therapy but didn't get much relief
It would also seem that any pain killing creams work on the installation cells that we no longer have
I think the princes that could feel the pea through 10 mattresses had the same thing in her back as we have
Hope it's not to bad or at least sometimes
Ian
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June 2012
Hi fellow cancer buddies
I am trying to get a better sense of the links between highly Traumatic Events in our lives and the development of cancer .
I was a firestorm fighter ( CFA Volunteer ) inside the black saturday firestorm that raced up the mountain and wiped out kinglake west and the other towns on mount disappointment . I didn't get any physical damage even though it got to 200 C where we where as the plastic melted on the fire truck I was crewing . I did however get and am still suffering from PTSD and then 12 months after the fires I was diagnosed with Colon cancer . The first thing the nurse asked me when I sat down for the first of many chemo cocktails was , did you have anything unusual happen in the last year ? Well it was like this . I told her of the fires and the after events and she was not surprised .
Do any of you also have highly Traumatic Events with in a few years of your cancers being detected ?
I understand that there maybe many ways that cancer is caused , I would like to hear from others who have had intense emotional shock before the shock of cancer .
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May 2012
Hi elspee
I would like to find out if others get any reactions from food and other drugs we are on .
I believe the blood pressure (Micardis plus 80 mg) pills make the symptoms worse but my GP doesn't think so.
also salt and apples ( the acid ) seem to make it worse
I don't know of any studies of this
Ianvs
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May 2012
Hi Samex
it has been 2 years since you posted here , do you still have the neuropathy symptoms , I too have numb feet and sometimes my hands , I did the chemo for bowel cancer about 2 years ago now , while the neuropathy is bearable in the morning of each day it gets more painful as the day goes on until I get to sleep, it would seem that the areas are slowly regenerating the damaged nerves , well maybe its hard to tell .
Ianvs
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March 2011
Thanks Samex
My chiropractor who is giving me the massage therapy also explained it in the same way .
He is trying to over stimulate the mussels that surround the effected areas to speed up regrowth of the myelin sheath , or as he said the cells that incase the nerves and give then some barrier from feeling to much.
thanks for your input
Ianvs
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March 2011
Hi, fellow cancer researchers with cancer or live with someone with cancer!!!
I consider myself very lucky so far as the only real side effect i have is Peripheral Neuropathy and I know others have much worse .
I'm hoping to find other people who have tried treatments for Peripheral Neuropathy.
I was on 2 chemo drugs for 12 treatments over 24 weeks after they removed a 20 mm cancer tumour and 1/3 of my colon and 15 lymph nodes 5 of which had cancer .
they stopped the oxaliplatin after the tenth treatment , i had a severe reaction to one of the drugs a week after the 8th treatment .
Neither the hospital or doctors had any suggestions for s treatment just wait and see if it goes away over time , 6 weeks, 6 months , 2 years if it hasn't fixed it self after 2 years it may not go away at all .
It has been 3months and I still have the sandpaper like feelings in my finger tips and the soles of my feet .
I have been trying a few alternative treatments l including aggressive mussel massages , dry needling ( acupuncture) but they have little to no long term effect , the massages do help in the short term as they distract me from the constant Neuropathy sensations .
i was on Fluorouracil and Oxaliplatin , neither mentioned on the US website "medicinenet" as a cause of Peripheral Neuropathy.
I have just had my first Colonoscopy since the end of the treatment and the surgeon removed a small polyp and now i have a long 2weeks wait for the results .
ref:
http://www.medicinenet.com/peripheral_neuropathy/article.htm
"Cancer therapy drugs such as vincristine (Oncovin, Vincasar), and other medications [for example antibiotics such as metronidazole (Flagyl), and isoniazid (Nydrazid, Laniazid)]
Has anyone tried any of the treatments on this website or anything else for peripheral neuropathy caused by cancer drugs ?
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