I'm new to the site and to cancer. I'm searching for people who are in a similar situation to me, that is with cancer that has spread to the bones. I have been to prostate cancer support group meetings, they are very helpful and it would be even better if I could contact someone who has advanced pc. I am interested in finding out what is in store for me down the track and in how others are coping
I have advanced prostate cancer. Fourteen years since I was diagnosed, Stage 2b, Gleason 5 + 4. I've had several lots of radiotherapy, intermittent Androgen Deprivation (been through menopause eight times!) and currently on no treatment while they work out what to do with me. It isn't in my bones yet, just working its way through my lymph system.
I have been on a couple of clinical trials and keep an eye on www.australiancancertrials.gov.au/ and www.cancervic.org.au/trials to see what new trials of new agents are out there. At present I have not had cytotoxic chemotherapy and hope that that is a long way off. So in technical terms I am chemotherapy naive and castrate resistant. Hate that term - I prefer hormone refractory.
You cannot change the direction of the wind. You can, however, trim your sails. Anon
I know what you mean about the androgen deprivation, the hot flushes are what get to me, they come at some awkward moments. I also get some big mood swings, did that ever happen to you?
I start another lot of radiation tomorrow, hopefully this might ease the pain in my hip.
I'm still working so don't know how I'd fit in with the trials, that is something I'll have to look into though. How did you do on the trials, notice any difference in your well being?
Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.