Introducing myself

[Livelife01]

I was diagnosed with Stage 4 Endometrial Stromal Sarcoma- Low Grade four years ago.  Since then I have had radical surgery to remove my cancer. However, it reappeared in the lymph nodes in the abdomen. 

I have been very fortunate with my treatment. I take Famara once a day. I recently had a CT scan and it showed that it is stable, a PET scan 4 days earlier showed no cancerous activity at this point in time. So I’m a little confused re: the lymph nodes, but have great faith in my remarkable doctors. So for now I am feeling relieved. 

I know my cancer is very rare, but would be nice to hear from other suffers of this type of cancer. 

Till next time...love living life🌻

[Katekat]

Hello @Livelife01 and thank you for introducing yourself!

Thank you for sharing your story

Has anyone else had or living with Endometrial Stromal Sarcoma or similar that could offer any insight?

[Tobi]

Hi
I also have endometrial cancer. I was diagnosed in 2013 as stage 4 when i was 37. I had never had kids.... It raised its ugly head a year later (after chemo, radio, radical hysto), again 7 mths later. To date it has come back 5 times. I have had 2 surgeries to remove tumours (liver and diaphram), another 2 rounds of chemo and hormones. I have checkups every 6 weeks. I feel great at the moment (checkup tomorrow having had a scheduled PET on Monday). Lymphedema is an issue but a small price to pay. I am now having massages every 2 weeks.
I go to the gym 5 days a week which i love.
Happy to chat to anyone else who has this cancer. To date i haven't met anyone!
🙂