Hi Inoperable isn't treatable or incurable. It simply means they cannot currently operate to get it all. When you are diagnosed the first thought is crap just cut it out and get rid of it. Totally understandable. But think treatable. You are not dying. You can be treated. They may use chemo or other treatments to shrink the cancer (so surgery may be an option) or get rid of it. I get that it is an awful time. But honestly look to the positive. I have had my stage 4 grade 3 cancer recur 4 times and have been told i am terminal but am still here 10 years and counting (i was 37 when diagnosed with uterine cancer). The worst and best advice i got was "don't be a victim". Harsh but true. Be positive. It is a crap thing to happen, not fair etc etc but you are still here and there is hope.  ... View more

Hello! I was lucky.  My GP knew it wasn't good when I saw her and sent me for an ultra sound immediately. From there I saw the gyno within a day or so (he told us if we wanted kids we should start trying asap...) Then it was 2 weeks for the D&C. Then cancer diagnosis (a horrible experience as he specialises in IVF... so a waiting room FULL of pregnant women). He referred me to a surgeon at Cabrini and from there it was all pretty quick. Diagnosed 24th April and surgery on the 5th May. By that stage the cancer was outside the uterus with a tumor attaching itself to the rectum. I felt like I was going insane for the first 6 weeks. Rapid onset menopause was horrid. My oncologist spoke to my GP and put me on antidepressants and I immediately felt 100% better. The anxiety was horrendous before that. I also saw a counsellor in Geelong. The first one wasn't great but the next one was wonderful. It helped to talk to someone who wasn't family. They had enough to deal with (My dad was diagnosed with prostate cancer 2 weeks before me).  Since then things are up and down. I exercise a fair bit which I think has helped with treatment. All my treatment has been in Geelong thankfully (I lived in East Geelong and now in Ocean Grove). I couldn't imagine travelling to Peter Mac (My surgeon wanted me to go there).  I did an exercise rehab program after I finished my 1st chemo round. All other patients were 55+. I have only met one other person with cancer around my age. And no one with endometrial cancer. And no one in my group has had it recur. It can be a bit lonely!  Great to hear from you. I hope we can keep chatying  Tobi ... View more

Hello! I was lucky.  My GP knew it wasn't good when I saw her and sent me for an ultra sound immediately. From there I saw the gyno within a day or so (he told us if we wanted kids we should start trying asap...) Then it was 2 weeks for the D&C. Then cancer diagnosis (a horrible experience as he specialises in IVF... so a waiting room FULL of pregnant women). He referred me to a surgeon at Cabrini and from there it was all pretty quick. Diagnosed 24th April and surgery on the 5th May. By that stage the cancer was outside the uterus with a tumor attaching itself to the rectum. I felt like I was going insane for the first 6 weeks. Rapid onset menopause was horrid. My oncologist spoke to my GP and put me on antidepressants and I immediately felt 100% better. The anxiety was horrendous before that. I also saw a counsellor in Geelong. The first one wasn't great but the next one was wonderful. It helped to talk to someone who wasn't family. They had enough to deal with (My dad was diagnosed with prostate cancer 2 weeks before me).  Since then things are up and down. I exercise a fair bit which I think has helped with treatment. All my treatment has been in Geelong thankfully (I lived in East Geelong and now in Ocean Grove). I couldn't imagine travelling to Peter Mac (My surgeon wanted me to go there).  I did an exercise rehab program after I finished my 1st chemo round. All other patients were 55+. I have only met one other person with cancer around my age. And no one with endometrial cancer. And no one in my group has had it recur. It can be a bit lonely!  Great to hear from you. I hope we can keep chatying 😊 Tobi ... View more

Hi I was diagnosed 6 years ago this week with stage 4, grade 3 endometrial cancer. I had just turned 37. No kids. The gyne I was sent to didn't think it was cancer even though my grandmother had had it. Never asked my symptoms or why I thought it might be (I was fit, thin and young). He was shocked after the D&C. My uterus was 60% cancer.  I had a radical hysto and omenectomy, chemo and radiation. It came back in 11 months in my liver.  Then had hormones for 7 ish months before it came back in my liver. So chemo again for 6 months. Got another 6 months before it was in my liver again. This time had left lobe removed. 6 months later was back again for tumour removal next to the liver and had intense 3 months of chemo (every Monday). I had my last chemo in December 2017 and am going well. I have checkups every 6 to 8 weeks and scans every 5 to 6 months. I do have lympodema from the surgeries etc and I get very tired. But very lucky to still be here. Tobi ... View more

Hi   I was diagnosed with stage 4 endometrial cancer 6 years ago. I had just turned 37. I had a radical hysterectomy and omenectomy (cells were in the omentum). I then had chemo and radiation.  The hysto brought on immediately menopause. I felt like I was going insane for 6 weeks as I had huge anxiety. My doc put me on effexor (antidepressant) and I felt better immediately.  6 years on I am still here! The cancer has come back a further 4 times but still here 🙂 Tobi ... View more

Hi I also have endometrial cancer. I was diagnosed in 2013 as stage 4 when i was 37. I had never had kids.... It raised its ugly head a year later (after chemo, radio, radical hysto), again 7 mths later. To date it has come back 5 times. I have had 2 surgeries to remove tumours (liver and diaphram), another 2 rounds of chemo and hormones. I have checkups every 6 weeks. I feel great at the moment (checkup tomorrow having had a scheduled PET on Monday). Lymphedema is an issue but a small price to pay. I am now having massages every 2 weeks. I go to the gym 5 days a week which i love. Happy to chat to anyone else who has this cancer. To date i haven't met anyone! 🙂 ... View more

Hi   Don't panic about being told you are terminal. It doesn't mean you are dying. I was diagnosed with endometrial cancer when I was 37, 4 years next month. Mine came back after 12 mths (had a radical hysterectomy, chemo and radiation) in my liver. So went on hormone blockers for 9 mths which got rid of it for a 9 mths, then more chemo, and 6 mins after finishing chemo it was back again. Always in the liver. So had a liver resection in December. I was told 2 to 3 years last year. But who knows.... I could be hit by the proverbial bus before then!   You do have really down times but there are also good times. I look at it as we are all going to die. Unfortunately we know it may just be sooner than what we thought. So now I don't worry about the little things. I certainly don't look the way I used to (thank You chemo, menopause and hormone blockers! 🙂 ) but I am still here and able to enjoy life.   We all just have a new normal.   Tobi ... View more