Left supraclavicular lymph nodes metastasis cervical cancer primary rare occurrence

[Lovestreet68]

Hi hoping to find..people with cervical cancer metastasis to left (or right) supraclavicular lymph nodes stage 4. Had been in remission for 3 years..just diagnosed recently with this rare occurrence 0.01%...from a stage 1b primary..feel devastated as am asymptomatic and feel great. All I can hope for is no metastasis else where later..as my pet ct scan shows all clear...my oncologist says this is so unfortunate and should not have happened...feel upset as was misdiagnosed as multinodular goiter a year ago! I had to beg for a biopsy! Patient follow up on cancer ex patients in remission etc is appalling..I am so anxious and frustrated that I cannot find anyone with this occurence of cancer metastasis and how rare it is. Regards Poppy 

[Katekat]

Hello and welcome to the community Poppy!

Thank you for reaching out and sharing your story with the community, I can only begin to imagine how upset you must feel with the misdiagnosis  

I am super glad you found us though!!

I've just sent you an email too, with some tips and some information about a program here at Cancer Council I think will be of interest to you. I look forward to seeing you more around these parts 

Cheers,

Kate

Online Community Manger