My mum is struggling with my diagnosis

Mels80
Visitor

My mum is struggling with my diagnosis

Hi, 

 

My name is Mel and I'm 45.

 

So nearly 12 months ago i was diagnosed with endometrial cancer.   It was supposed to be a Hysterectomy and then some radio and that was it. 

 

Unfortunately on the table I went into cardiac arrest, renal and liver failure, DIC and a coma for 3 weeks which they could not wake me up from. My mum and friends were with me all the way but it taken a toll on everyone.

 

Finally a month nearly later i woke up and during some time my left leg had become numb and also had severe foot drop. I didn't realise at that point i had been the sickest person in westmead icu.

 

12 months on I still can't feel my leg and the drop foot has not improved but I worked really hard with and learnt to walk again,   it is a struggle every day with it and i wish it was easier.

 

I finished internal radiation in June 25, 3 months later what I thought was a blood clot was actually IV metastic lung cancer and cancer of the port aorta.  That hit my mum very hard and I always try and be upbeat to make her feel like she can handle this. 

 

My first scan after 3 treatments of chemo and immunotherapy  they were really happy and my cancers had all shrunk.  I see the oncologist on 20th Jan 26 to go through the next lot of scans.

 

During this time my mum has been my rock and i could not have left hospital without her.

 

I have just completed 6 cycles of chemo and immunotherapy and the plan is every 6 weeks for two years I will do immunotherapy.

 

A side effect of the immunotherapy is that it gsve me type 1 diabetes so that is something more we are dealing with. 

 

My mum is really struggling to cope atm and she thinks I'm going to die.  I have suggested volunteering which she is going to do for the RDA.

 

I did also suggest maybe seeing a counsellor but she said that won't change my outcome.

 

I am after any thoughts on how to get her through this and try and make her feel happier. 

 

Thanks

Mel

1 REPLY 1
Kaz1512
Regular Visitor

Re: My mum is struggling with my diagnosis

my Mum is struggling with my cancer,  I'm Stage 4 breast and now it's been four years.  I have to pretend I don't have it when she is around,  my lifestyle has changed and she can't handle it.  I don't feel like eating,  I dont drink and my hair is thin.   she wants the old me back,  I sense she is angry at me and would rather spread time with people without cancer.  

 

I also try and be upbeat with her and happy but it's not working.  I also don't know what to do,  it must be hard watching your children get cancer and there is no cure.

 

Hmmm I don't have any hints to make your Mum happy.  She enjoys spreading time with my children,  or going out in public.  Sadly I don't make my Mum happy and I do hope you have more success than me.

 

Take care

Post new topic
Talk to a health professional
Cancer Council support and information 13 11 20Mon - Fri 9am - 5pm
Cancer Information and Support

Online resources and support

Access information about support services, online resources and a range of other materials.

Caring for someone with cancer?

Find out what resources and support services are available to assist you.