Surgery22/02/19

[Felix34]

Hello all,

My surgery today seems to have been a great success .  My neurosurgeon was able to resect the whole tumour but there was a lot of edema around the tumour.

i am writing this why lying in CCU ( critical care unit). I am bored lol 

The surgery was for a tumour in the tight temporal lobe and I seem to have no side effects at this stage My neurosurgeon has the hands of god.The first two craniotomies he said I would be paralysed but I still walk with a limp

The week will consist of scans and Neuro tests all week yah..Neuro tests are the worst in CCU as they do them every hour 🤬 lol. Not much sleep tonight.

Pain is tolerable at the moment with the help of drugs but do have a headache.

befote surgery yesterday my anethesist explained my dizziness perfectly .It is aura dizziness, where my whole head goes fuzzy it is normally the first sign of a partial seizure but because I am on such a high dose of ant seizure medication it doesn’t then form into my muscles jerking but feeling like I am going to fall over.

i am in good spirits and 

I will keep fighting this as long as I can

take care

Colin

[kj]

Colin

It is good to read your surgery went well and that you are in good spirits,wishing you a speedy recovery from surgery.

best wishes

kj

[Felix34]

Thanks kj,

Everything is going well, I feel good and the Neurosurgeon is really happy with what he can see from the MRI scan done after surgery. Headaches now are just from surgery and not pressure headaches from the tumour and I’m not getting aura dizziness when I stand up and then walk.

The next phase coming out of hospital is going to be interesting, with what they will do with treatment as they are talking radiotherapy again because the first lot of radiotherapy was specifically targeted to where that tumour was and this one was in a different lobe.

take care

Colin

[kj]

Colin 

Its good your dizziness is not there, and that you are already focusing on the next stage when you are out of hospital,I admire your strength and spirit.

kj

[Felix34]

My recovery is still going well I feel good in myself.  I am in a ward on my own, bandage came off today and I was able to wash my hair. It’s weird how just the feeling of washing your hair can make you feel good. It’s a lot better than having the catheter taken out 😳🥴🤬lol 😂. Sorry if I just went too far, I am bored.

When I look in the mirror the cut looks like a question mark on my right temple it’s just missing the dot so I have been calling myself the Riddler. Might have to go and find Batman.

I hope to be out by the weekend but they will get me  checked for blood clots before I leave as I did get one in the calf when I had my first resection done.

Then it’s on to how else I can fight it such as radiotherapy and chemotherapy, the wheels are in motion for this to happen but just need the wound to heal first.

take care 

Colin

[Budgie]

Hi Colin,

Glad to hear the surgery went well & that you’re in such good spirits.   Let’s hope it’s the last one of those you have to go through.   

Bring on the treatment now, hey.   All the best. 

Budgie

[Felix34]

Thanks Budgie,

Yeah love treatment, not lol

I had a meeting with my radio oncologist today and that was good and positive.

My mask fitting has been booked as well as a treatment start date for radiotherapy. Been through this all before so I know what I’m in for.

After that it’s then working with the chemo oncologist to see what chemo drug we look at using.

Options with chemo are to stay on Temozolomide as it didn’t comeback in the same spot as before or to go on Carboplatin and see how that goes. Either way there are options and if comes back we take it out again.

So we keep moving forward and fighting it.

Take care 

Colin