Lonsurf

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Lonsurf

I was diagnosed at the age off 33 with bowel cancer after trying many treatments, intravenus and oral with having the spots i have left still active over 3.5 years.

Just recently i have started taking lonsurf an oral chemo tablet which has just recently come on the P.B.S in december 2018, i started taking it about a month ago and since have  started getting chronic back pain. 

Affecting my sleep, work, relationships and getting in a vicious cycle of not sleeping and the pain is exhausting.

I am wondering if anyone else is taking this drug and if so, what side affects are you experiencing? 

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Cancer Council Team

Re: Lonsurf

Morning @belladeka,

 

How are you doing today?

 

Sorry to hear about the pain you've been experiencing, that must be incredibly debilitating for you Smiley Sad

 

I had a quick search on the TGA (Therapeutic Goods Administration) information available on Lonsurf and couldn't see anthing about back pain in there. You can access the information here (just hit agree on the splash screen to access it) and check out all the known side effects.

 

Has anyone else had any experience with Lonsurf?

 

Cheers,

Kate

Online Community Manager

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Re: Lonsurf

Hi Kate,

 

thank you for the response but since then ive been to peterMac and had another PET scan which unfortunately the LONSURF ive been taking isn't helping and the cancer has now spread to my lungs. my next question is that people that are on LONSURF have they had the same outcome and is it best to go back to another type of chemotherapy.?

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