Hi @Cindi54  So sorry to hear you are going through a terrible time with your treatments, chemo certainly knocks you around, your strong will gets you going and your great attitude so inspiring  I wish you kindest thoughts with you next treatment  😘😘 ... View more

Hi @greg57  @so sorry to hear of your terrible side effects  I hope you are starting to feel some improvement and are able to rest as comfortably as possibly  three months is a long wait hopefully some results will give some relief to the wait and worry  take care my kindest thoughts with you  ... View more

Hi @Richard56  thank you, it does a lot for our mental health to have some contact and great support from others as we are faced with the worst battles of our lives and you and @Cindi54  are great support  my husband is my great support and comfort and your wonderful partner is your great support as well  and you will both get through these tough days  kindest thought and love with you    ... View more

Hi @Richard56  @I’m so sorry to hear of your terrible setback  BCG  gets your immune system working, so hopefully when you start  your treatments you  have a great result, my immune system fired up really well although it worked slowly it kept working, so hopefully yours will fire up and help your whole body.  I have been very fortunate that I have never had any medication other than Panadol, and although I go through times of simply not being able to sleep I have refused sleeping tablets but I do manage  to get in a few hours, I don’t stay in bed I get up and I do some jigsaw puzzle and amazing how the time flies by, I do sleep a lot better now    my kind thoughts with and your partner   stay strong and think good thought always as things will improve  Jennifer xx ... View more

Hi Richard56 thank you for your kind words  I do realise my only option is major surgery and I think I’m at peace with this is the way to go, well getting there  I wish you well with your treatments and decisions best for you  we are lucky we have Cindi54 as a great support of encouragement  ... View more

Hi Cindi54  Your a great support and to many,  your so right  people retreat as they simple don’t know what to say, they don’t need to say anything and family are the worst, same has happened to me with my brother and father , it does make us feel contagious, I have a wonderful husband who is my absolute rock  have a good week 💖 ... View more

Hi Cindi54 thank you, you always have lovely words to say  you certainly have  gone through a not very pleasant treatment, I do hope you are starting to feel better    hopefully I will have an appointment this week or next with biopsies results and best way forward, and the professor does give options, although only two are left with one relying on biopsy results to see if even an option, we are looking at major surgery as best way forward   how good would it be to be in same states for a moral support catch-up, I feel to be both going through the worst times of our lives which no one can truly understand unless you are in that situation, my cancer and surgeries are so ‘unseen’ as I’m always told how well and good I look, which does nothing for how l actually feel and to have someone going through the same would be such a great support   have a good week lovely you are such a strong support and strong human 💖💖  ... View more

Hi Richard56 Thanks for your kind words, we are all going through this in our own way with different cancers in different ways  BCG gets your immune system working so  your immune should fire up and may help you a lot  I do have aggressive T1G3 bladder cancer and ureter cancer with a stent, I have no pain and wouldn’t even think I have cancer and the reason I delay surgeries as I possibly don’t take it too serious, however that doesn’t stop my brain at night thinking and I do know I have to more serious as my options are limited  wishing you well with your treatments  ... View more

Hi Richard56 thats is good your treatment is starting  I went through 12 treatments weekly of BCG and had no problems at all just a little achy and tired after but the next morning all good, my immune responded really well and worked slowly  it’s a good procedure  so good thoughts with you  ... View more

Hi cindi54 haha!! No not at all am I been kicked around, my professor is wonderful and is doing his best for me, I guess I make it hard for him as I don’t take it seriously  I’m not having any new treatments, the three cystoscopy ureteroscopy and Turbts and stent changes I’ve had this year are my treatments  my cancer is also high grade aggressive being a T1G3 As my cancer constantly returning I do have to look at major surgery as 20% success I feel is not worth considering, but like you say, who knows unfortunately as my professor is telling me my waiting is up!  I am definitely not positive as I feel the devastation when this is a let down and I’m absolutely not negative I simply  like to sit in the middle and hope for the best  and simply try hard not to overthink  ... View more