a month ago
1 Kudo
Hi @Cindi54 Yes absolutely no point worrying when there is enough to keep thinking about, which way to go next, what to do, you have enough distress with your chemo sessions and I guess with your home and the work and expense would be quite a worry. Good wishes for your next chemo hope it goes well Jennifer
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a month ago
1 Kudo
Hi @Richard56 I’m not sure if you have reached out to Beat Bladder Cancer Australia, each month they have a zoom meeting with interesting speakers, might be a good contact for you. There next zoom is first Tuesday in February, once you register with them they will send emails. It’s the only place I’ve come across women with bladder cancer, as they tell you 80% men affected so doesn’t leave much room for women, haha!! jennifer
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a month ago
1 Kudo
Hi @Richard56 So pleased your BCG is going along well, I would be tired on the day but next morning fine, men seem to have a harder time than women, that’s what my BCG nurse told me so sorry to hear your family has been devastated by cancer, so terribly sad and no wonder you are having such a bad time emotionally, the good thing your treatment going well and you are on up organic food is such a fraud, an expense no one needs. I certainly don’t lead a healthy life and even when I should be trying to I don’t, my life has not changed from before cancer diagnosis in what I eat, it should but why I’ve been told I’m very healthy I go with it, the only medication I take is 1 blood pressure tablet daily, I do take some vitamin tablets by my choice don’t put too much pressure on yourself hugs and cuddles always Jennifer xx
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a month ago
1 Kudo
Hi @Cindi54 I’ve nearly really asked why I got the cancers I got, my professor has told me there are no medical answers to why people get cancer other than risks that maybe involved with each one and for me with bladder cancer with the 10 risk factors I was in one over 60, ureter cancer just rare in women and to have them both together not quite rare but extremely uncommon in women especially, and why my cancers are working how they are also rare. I don’t put any pressure on myself to really care as what is the point, you only get distressed, upset and I can get anxious enough without worrying but just think of us as maybe the very few women with ureter cancer. i have lived an entirely different lifestyle from you so there is the medical science in itself as to no reason we got cancer I’ve never smoked, occasionally have a gin or glass of wine and have only travelled in the last 20 years and not in Europe I always just go with the answers of medical science can give no answers and with my case going to America and Asia and leaving them puzzled as well with the same conclusions as my professor, it is what it is jennifer xx
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November
1 Kudo
Hi @Cindi54 thank you for your kind words usually you see all names of everything on the pictures, but bladder cuff is not mentioned on anything but I think you maybe right it’s where the ureter attaches to bladder Quite amazing that you and I both have the rare ureter cancer that is very rare in women From the report but of course I’m not sure, it didn’t seem your kidney had cancer I know they said my kidney may go too, but not any more as it completely healthy and cancer has not travelled that far, my ureter has cancer from bottom which I guess is bladder cuff but doctor has never said that word and is about half way up My cancer is all enclosed in bladder bladder cancer and ureter not common together and less common in women
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November
1 Kudo
Hi @Richard56 Thank you so much for your kind words, and the antibiotics are starting to do there thing not coughing as much, bad coughs simply knock you around and make you feel miserable, i think by next weekend I will be an anxious mess 😔 Hope your going well and had a good week hugs and cuddles always Jennifer
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November
1 Kudo
Hi @Cindi54 I’ve probably been pretty lucky as I’m not sick at all or even tired, felt really knocked around for a few days but the constant cough certainly makes you feel simply miserable, eight days today and antibiotics are starting to do there thing not coughing nearly as much yes absolutely the amazing things they do now, what is the bladder cuff I’ve never heard of it and can’t seem to see it on bladder images, even in the booklets I have from doctor From what I know I will still have a bit of an incision as my bladder is to be removed, my cancer ureter should only be half removed my stoma nurse is so lovely and comforting I think next weekend I will be quite anxious 😟 though hugs and cuddles always Jennifer
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November
2 Kudos
Hi @Cindi54 You certainly have been having a tough time, don’t put too much pressure on yourself, although you want it over with, if it is wise to have a break to give your body a rest maybe a good idea, then again if they are happy to keep going, I guess you will hang in there and be pushing on, hope all goes well next treatment, I know how strong you are I will be having robotic surgery 3rd December for a major Cystectomy, I have a terrible cough at moment, are on high dose antibiotics at this stage still going ahead, but I’m not confident it will take care lots of hugs and cuddles Jennifer
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November
2 Kudos
Hi @Cindi54 I’m so sorry to hear of your recent hospital emergency, I do hope you are feeling a lot better. I hope the chemo is not taking a toll on your body, and maybe a break from chemo is a good thing as it certainly is giving you such a hard time my good thoughts with you that you will back to the things you love so soon hug and cuddles 🥰
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November
Hi @Cindi54 I am happy you are a lot better today, you certainly get knocked around so much, cancers in different parts of the body work so differently and treatments all so different. I hope things are only on the improve for you with your strong attitude I am sure you will be back doing the things you love sooner than you thought my kind thoughts and comfort cuddles with you 🤗🤗🤗
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