Hi @greg57 , I'm glad you're getting it done so soon, just get it over and done with, I hate waiting I find myself worrying over it all too much, so best I always feel to get it done quickly. I really hope it'll all be not too bad for you, you might find it's not nearly as bad as you think it'll all be. Wishing you luck,🤞 Cindi xxoo ... View more

Hey Richard, Hoping you're ok, haven't heard from you for a while? Anyway, take care, Sending hugs, Cindi xx😘 ... View more

Hi AB  I too have bladder cancer but a little different as female, mine is non muscle invasive too and has been for 18 months, although it is not performing as to  how cancer should, it is high grade T1G3 as I also have ureter cancer, but you should go with BCG I didn’t have any side effects other than on same day , a  bit tired and a a few aches, Panadol was all I needed and when I woke up in the morning I was fine  My professor has told me my cancer is complex and complicated as with the two and they are presenting different challenges constantly slowly  so try the treatments and there is some good info from cancer council  ... View more

It's Felicity here from the Supportive Care Team at Cancer Council. It's lovely to see the supportive comments from everyone in the Online Community. Please feel that you can reach out to Cancer Council NSW on 13 11 20 for Information and Support.    Take Care Felicity  ... View more

Hi Cindi54 bladder cancer often attacks lymph nodes first but not necessarily, fat is only a protection layer Sounds like the ureter cancer is different when you don’t have bladder cancer as if you didn’t have bladder cancer there is nothing to get out of the bladder and that is why you would be having chemotherapy differently as you don’t need it in your bladder  ... View more

Hi Chloe It's not easy seeing your father in this condition, and it's good that you've found this forum. There are so many different types of cancers and cancer treatments, even people who on paper may have the same type of cancer their treatment and side effects can vary.  It may be worth asking for a meeting with your father's consultant. If you are in Australia, you can call the 13 11 20 support line.  The line is managed by Allied Health worker, they can provide you with emotional support and may be able to answer your clinical questions.   ... View more

Hi Susana  thank you for your reply  I have looked through Cancer site, unfortunately cannot find information on Heated Mitomycin C  I had three treatments of intravesical Gemcitanine and Docetaxol last year  the Heated Mitomycin C is the last option for me before the ‘gold standard’ cystectomy I am high grade T1G3 bladder and ureter cancer with a stent  I am well and all good    ... View more

Hi BadWolf73 absolutely family and friends come along for the free ride, unfortunately many soon jump  off !!! ... View more

Hi Deadalready88 my thoughts with you, and I feel with you, friends and family will never really understand what we are going through, no matter what they say, they are are all doing there best and I do acknowledge that. I had decided I would go through major surgery for my bladder and rare ureter cancer, and after I got the details and cost of my surgery on Friday, all has changed. My body is going to be mutilated as far as I’m concerned and I will not be going through this, so have decided I will not be having surgery. Have decided to go with a third opinion and my GP is now doing a report for referral to public system at Peter MacCallum, as I’m not sick have little pain I’m simply going to try to go on with life, I have a stent in my ureter which I know will have to be changed again in a matter of a month or two, I feel I have been very let down and I’m at a stage of no more, so will wait to hear from public system as I do know the major system with what has been put in writing will never happen  ... View more