Hi @Jennifer66 , I't's always (I think) good to have details of what you're dealing with so you can figure out what you want. Sounds like your treatment's working if those original tumors have gone, not good though that there's a new one. I'm surprised they don't give you normal chemo as it seems to wipe out other worrying things like: some of my skin cancers have disappeared! A lump in my mouth I was going to need cut out..has disappeared & delightedly I found mosquitos hate my chemo and instead of harassing me untold like they usually do, they either go to bite me and drop dead or avoid me completely 😆 sweet revenge!! I was just thinking? perhaps they may consider that for you? But of course I don't know as much as your Onc,  but just thinking? might be worth asking? Anyway, good luck to you, let us know what's happening. Cindi xx ... View more

Hi @greg57 , That would be nice to catch up when we're on recovery and feeling better😊 How did it go today for you? Today I saw my Onc, and I asked a few questions, like "why" my cancer is called "bladder cancer" when it was in lining of my right Ureter? and he said because it's all attached, the lining goes from kidney down ureter and around lining of bladder. So got that question sorted. Also I could go ahead with chemo today so I did and all was fine, I'm home now and feel ok, I will take lots of meds to stop constipation as that can be a problem with one of my chemo drugs, and can become a big problem if you don't get on top of it from the start. I went away with more sleeping tabs, nausea tabs and an injection I inject tomorrow into tummy to boost my immune system.... they have treatments for all side affects sorted! wonderful what they can do for you now, so you try not to worry. Hope you hear back soon about what your next step, I honestly think it makes you feel a bit better when you KNOW what the plan is. My hair is meant to come out on the Carboplatin chemo, ( this is my third cycle)  but so far it's just sort of thinning, hope it stays that way, but if I loose it, it will grow back so just trying to focus on the positive. Sending hugs, Cindi x ... View more

Hi @SANTASLILHLPR , I'm so sorry about your cancer, but PLEASE don't presume it's the end for you, I think it may be harder for you because of your medical knowledge and you may be presuming the worst, but can't the chemo shrink the cancer? maybe put you in remission? I'm constantly amazed at how much more advanced they are now with treatments compared to even just 10 years ago! so don't give up hope, go into battle like we all are, fight!! 🤞😘 Sending hugs, Cindi x ... View more

Thanks @Richard56 , I also hope you're ok. Thanks for thinking of me, x ... View more

Hi @Jennifer66 , Thank you for the kind words, I'll face what I have to. How are you going? what's been happening with you? I also see my Onc tomorrow so I'll be asking lots of questions also about why my cancer's called bladder cancer if the tumor was in my ureter! talk soon x ... View more

Hi @greg57 , Sorry you got to go back again, but try not to speculate too much, we tend to over think these things and think the worst.Even if they ARE looking at other options, they are so advanced these days in all this that they will find a way to fix things for you. It's hard I know, I also find myself worrying about things but try not to. My big chemo and appointment with my Onc is tomorrow, Thursday, so I'll find out answers to my questions then ( I've written a list!) this is something you should do so you get your worries answered without forgetting.Not looking forward to chemo, but I'm trusting in my team to work out what's best for me. Yes my infection seems to have cleared well thank goodness, just got to drink 2 liters of water a day to keep my kidney flushed. Lets face all this together, we can do it, we will BOTH beat the cancer ' let me know how you go, Cindi x😘 ... View more

Hi @Richard56 , Hope you're feeling a bit better today. My treatment on Thursday was delayed till next week because of the infected kidney, so I'm feeling ok. Was kind of disappointed as I just want to get it over and done with, but it is what it is. I'm sorry about your teeth, my partner knows a few people who went to Thailand to get their teeth done and it was lots cheaper than here and done well, so maybe that can be something to consider? when your finished treatment? something to look forward to. But maybe not, if you can't travel. You're at least lucky to live so close to your hospital and Onc, that will make things a bit easier for you. Hope you have a nice time with your partner, hope it cheers you up😊 The sun's come out up here in Sydney so I'm going out for a walk. All the best, Cindi x     ... View more

Hi @greg57 ,  Good on you for getting that done, it sounds like it wouldn't have been nice but it's done now and that's great! Did they say what they intend for your treatment? or is it too soon yet? and please don't dread the chemo if you have to have it similar to mine as some people handle it fine. The problem for me is just the Carboplatin chemo that affects me so badly as I can't seem to tolerate the steroids they give you to counteract the nausea, most people it doesn't bother but it has a bad affect on me and my tinnitus in my ears too, anyway, they may decide you can have a different type of chemo, don't worry till you discuss it with your specialist, when do you go back & see him? Yes, they postponed my chemo today because of the infection in my kidney, so will wait till next week and have it then, after an appointment with my Oncologist. Just gives me another week to do things, in fact I feel good today and I'm going to go to my gym 😊 Take care, Cindi xx   ... View more

Hi @YelenaVSH , I'm here for you, reach out when you want, I know it's scary, but you're not alone. Cindi xx ... View more

Hi @Jennifer66 , Thank you for your kind wishes, unfortunately I just got a call from my chemo nurse and they have decided to delay my chemo for a week due to the infection in my kidney. Very frustrating, I just want to get it over and done with. How have you been? Cindi ... View more