About frangipani

frangipani

Carolyn2 I did not go into the internet for a long while and just read your email. I am so sorry to hear of your cancer. Are you now getting some form of treatment? Please explain what you are feeling. Frangipani.

frangipani

Hi Sophie, I think the Breast Care Nurses at your local hospital will help. I have two myself and will be contacting them. regards, frangipani.

frangipani

Zen thanks for your comments. Its two weeks now since I had the left breast removed and had tissue expanders inserted. The operation was not too long and the recovery just quick. The hospital had the best staff and I was home before I knew it. I remember asking the nurse for help in the BC for my first bath and the sight of my breasts removed was a shock but a relief for my left breast removed as my right breast was removed a year ago when i was first diagnosed with BC. That year was uncomfortable wearing a prosthesis and having just one breast. Now it feels "confortable" to look at - its a wierd feeling. As for the tissue expanders..... IF THERE IS ANYBODY OUT THERE ABOUT TO HAVE THIS PROCEDURE please listen carefully: * be ready for uncomfortable feeling * be ready for pain * expect restless nights * no sleeping on the side. a recliner is the only relief * the feeling of turtle shells hard against the ribs, constantly. * the shock the body goes thru is devastating... be ready for sudden shock waves as if the nerves are rubber bands talking to each other "what the heck is going on" i believe it will all end soon and i accept the pain. this is like an endurence test and if i can handle this - i can handle anything. But this is where i am now. the next step is the saline inserted and the expanders gently pushing up forming a breast. My PS said that when it gets to the correct size I get admitted again and he will remove the tissue expanders and insert the gel and this will be much more confortable for me. It will be the end. I am finished with Herceptin this month so no more oncology trips. will miss my friends there...... I am on Aridmidex for another 4 years and hopefully the BC will not be in my vocab!!!! Yours in pain Frangipani

frangipani

Linda, I am new to this site and listening to your story has brought a tear to my eye. I too am married for a long time and my husband does not leave my side. I am a breast cancer survivor and understand what you went thru with your husband. Be brave my darling and remember you are not alone. Keep writing to us and we will give you strength. We are so grateful for this site. Frangipani.

frangipani

Hi all, It is now just over a year since I was first diagnosed with Breast Cancer. What a journey. After Mastectomy, chemo and all that went with it...... I cant believe I have not had the chance to even think about what has happened to me. I became a grandma and the excitement of it all has just dissolved all the pain. My trips to the hospital, day care oncology and doctors together with heart scans and blood samples is something that nobody will realise accept my dear husband who never for one moment let go of my hands! I am so grateful for this and I keep reminding him each day how special he is! I am now in the stage of having the other breast removed because of genetic reasons and after considerable thoughts opted to have reconstruction. Its funny but I have suddenly felt so brave that i cant wait to get it over with. Its a wierd feeling. I want it all behind me and I feel that with reconstruction I will be back to normal again and Breast Cancer will be history. I wonder if anybody can lighten me on the subject of reconstruction. Am I doing the right thing. I understand that there will be no feeling so it wont be "normal" so who am i kidding? If cancer comes back there will be complications would'nt there? what about recovery.... my plastic surgeon warned me that for 3 mths i cant carry my granddaughter now 10 mths but i suppose better now than when she is over a year!!! I have been waiting for over two months and my plastic surgeon has'nt called me. He keeps saying that he has to get the whole team together before he gives me a date -- does this normally take that long? I suppose having a breast removed and reconstruction is a big job. Is anybody out there had this procedure done and if so how do you feel? this is very important to me as you are my only link to this kind of operation. I am now on Herceptin and it is my last 3 months left. which means I will be in remisssion. I feel fine. a little tired but that is because I am 58 years young and we all feel this way. Frangipani

frangipani

Hellow Reindeer, what a nice story. It seems you have an angel with you at all times. Bless you Frangipani

frangipani

Dear Julie and S......... thank you so much for your prompt replies. I like this blog... you guys make me feel so much better. I appreciate your time. with warm wishes frangipani

frangipani

I sincerely hope you guys recover and all this pain is in the past. Pain is something that is just "us" as women and we cope cos we talk about it. we get help which is great!!! Our tolerence level is high and we soldier on. I just want to add about my pain: Six weeks on after chemo finished, I felt this numbness in my feet and afterwards a burning feeling in my toes. Now I cant even feel my toes. Sometimes I have to look down there and notice I do have toes. Last night there was this tingling feeling like it was going to drop off. I kept rubbing them together - like, hey wake up. Each appointment at my Oncologist she asks "and how are your toes" and I tell her the above same thing and she says that if its the only symptom after chemo than i should consider myself lucky. In other words I should be glad to be alive!! which I am but there must be a cure for this pain I am having. Its horrible.

frangipani

thank you Miss Ren and applepie, this is the first time that I have spoken to "somebody" about my deep feelings. My sons feel sad about how I look and they want me to get back back to normal - I understand and respect how they feel and know what you are saying, but as a mother and wife the first thing we mums do is "keep the peace" OK i now KNOW that its my decision and something tells me to just have the other breast removed and and and.......... i dont know. I am so scared of this big decision. I have just had my first Complimentary Med appointment and will take this further. I thank you again for your time in telling me about your experiences and I thank CANCER CONNECTIONS for taking a load off my chest. PS

frangipani

Hellow. I am so terrified of reconstruction. everybody says that surgeons can do remarkable things. I am 59 years old and a grandma. my husband and family want me to go ahead and do it. I feel that breast cancer came to me and i am lucky to be alive! I just want the other breast removed and to remain breastless!!! It is so natural to me. My family feels that they will be depressed seeing me like that. I used to have firm DD breasts and dont feel anything different without my right breast. I now want the left removed so I dont have to ever worry about cancer appearing again. I could wear padded bras and just change my style of clothes. easy. any comments.

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