Hi Cindi, I had my appointment with the Onc this morning , I start my Induction BCG treatment on the 4th of Nov, that will be every Monday for 6 weeks, then in Jan my surgeon will have a look and see, if that's clear it will be every 3 weeks for 6 mths, with look and see every months. As you know its constant surveillance . How do you feel today, thinking about you and the treatment you had yesterday.  Hugs , Richard xx ... View more

Hi Cindi, Hope all goes well with your treatment tomorrow, I'll be thinking about you.  All the Best Richard xx ... View more

Hi Jennifer,  I have read some of your posts re bladder cancer and I really hope that you're doing ok. Its been 10 weeks since my bladder cancer was diagnosed,  I have had 2 surgeries, the first to remove 2 tumors and also biopsies taken,  the second was for re resection and deep biopsies, also prostate reline. My cancer is a hg T1 and results of the biopsies show no cancer has gone into the bladder muscle, next Friday I will have my first meeting with my oncologist, my surgeon say my treatment will be BCG, once a week for 6 weeks, then once a month for a year, then 3 monthly thereafter.  The surgeon will look see every 3 months. Just wondering how you are going now and how did you respond to the BCG treatment too, I'm just wondering what to expect.  Kind regards,  Richard  ... View more

Hi Cindi, How did you go with the Onc on Thursday and did you have another chemo session ?, I hope you're feeling ok, and are you well enough atm to get around and do things ok. My appointment with the Onc is next Friday, his rooms are not far from me which is good. I'm feeling low again today and didn't get much sleep last night even with the sleeping tablet, I'll be seeing my partner tomorrow, so that will perk me up, I haven't told you but I have lost a few teeth over the last few months, and now I don't have any chewing teeth , I brush twice a day but still they had to be removed because of decay, I'm in the process of looking into part dentures top and bottom, just another reason why I feel down as well. Be great if we could chat on the phone. Thinking of you and hope you're ok. Take care Richard xx ... View more

Hi Cindi, Sorry to hear you had a kidney infection, I'm glad you're ok now though. My review with the surgeon went very well today, the results from the deep biopsies indicated that the cancer had not gone into the bladder muscle, thank goodness.  My surgeon has arranged for me to see the oncologist in 2 weeks to set times for immediate immunotherapy. That will be once a week for 6 weeks then once every 3 months for 4 years the once every 6 mths for life. From now on my surgeon will look inside my bladder once every 3 mths for 4 years, after this period he will review my condition. He said the treatment will be for the rest of my life, he also did say that there is a strong chance the cancer will return within the next 5 years which he will deal with it when it shows again. I had a great couple of days with my partner, we went into the city and saw a daytime show which was great, had some nice fish and chips then went walking at the beach, and I'm certainly cheered up a bit now. So the news today was good, as he said to me, my cancer is life long. Hope you're ok. Chat soon. xx ... View more

Hi Cindi, How's your week been and how are you feeling?, I've been walking over the last few days, just a km at a time atm with my partner around the streets at her place, I can't walk too far as I need to empty my bladder frequently, it's so annoying as it comes on so fast and I can't hold on either, hopefully that will settle down, I will also talk to my surgeon on Tuesday about that too. I've been at my partners for a couple of days this week, I came home yesterday. My depression comes and goes in waves, today is not the best of days though, i had an average sleep last night even with sleeping tablets, most nights are the same having to go to the bathroom 6 or so times. My pain has settled down a lot now although its not completely gone yet, 1st surgery it took about 5 weeks for the pain to go so there's a bit to go yet. Next Tuesday I will see my surgeon for the results of deep biopsies and review for treatment, and appointment with onc 🤞 How are you feeling ? and when is your next chemo , do you know when you will see your onc and surgeon next. Next few days are going to be sunny, and I'll get to see my partner on Sunday, she is taking me to a play in the city, so that will be fun. Thinking about you and hope your ok xx ... View more

Hi Cindi, Thank you for your support, I really appreciate it.  Yes my partner and I love bush walks. unfortunately she lives 40km away and works full time nightshift, however she is also fantastic support. But its different when I can talk to you, we're both going through the same journey, and that helps me come to terms with it a little better hearing your story. Rained all day here, just an inside day Hope you had good time bush walking.  Take care, xx   ... View more

Hi Cindi, Thanks for your message, I look forward to them. It's nice being home, but its different for me now, right through my life I've always been strong inside right through the ups and downs and kept myself together, since being diagnosed with Bladder cancer, my feelings are different now, I've been a bit depressed on and off, I've felt a bit more lonely too, I guess I'm still coming to terms with it as well. Once I start to heal properly, I'll be able to get out and do things to keep my mind occupied. Do you go through different feelings too ? From all your messages it sounds like you're really on track and really positive. Today its raining here and cold, so just watching TV and I'll read my book later. Next couple of days I'll do some short walks so I don't lose too much fitness.  I'll be thinking about you and hoping you're getting through this ok. Have a good day🙂 Take care, Richard xx ... View more

Hi Cindi, Hope you're ok, thinking about you too. My surgery went ok, this time he removed part of my prostate as well, I was only in 2 days , a cathoda flush for 36hrs, I couldn't sleep...anyway I'm home now and I'm a lot happier, i only have a slight bit of pain, but a lot more when urinating, it will be probably be 4 weeks of healing. I have an appointment with the surgeon on the 15th Oct for a complete review, so I'm staying positive, have to just wait, then see what the oncologist says about treatment. So last couple of days I've just been watching TV and reading my book, surgeon said limited movement for 10 days, but I will be looking forward to going back to the gym to walk on the treadmill,  and I'm lucky that my gym is only 100m away from me. So how are you feeling ? and when is your next chemo ?.  Have you been getting out much at all, last couple of days here the weather has been good, a bit of sunshine always helps me. Hoping you're ok. Take care, Sending nice hugs too xx Richard    ... View more

Hi Cindi, I've been thinking about you and checking in on how you are feeling after the big chemo session on Thursday.  I really hope you're feeling not too bad and you can get back to the gym in a few days. Finally we are having some good weather,  just the weather can have a bearing on how you feel, tomorrow's going to be sunny and 21 here, but I'll watch the grand final in the arvo, my team is out but it'll be good to watch. I've been stocking up on supplies, food etc for my op on Monday, my last op I couldn't drive for 2 weeks and couldn't walk far for a week, it'll be similar this time around I guess. Its crazy cause today was a day with no pain in my bladder, first time since the surgery, but I'm still incontinent though, I hate the nappies, maybe this will be a lifelong thing though. I hope you're ok, and I'll be thinking about you.  Take care. Hugs xx, Best wishes, Richard    ... View more