a week ago
1 Kudo
Hi Rob, Thanks for reaching out, here we are all affected by cancer to different degrees and the location of the cancer, and we are here to support you via this forum. I am so glad your GP has prescribed meds to help with your depression, I am so sorry that you are isolated too, does that mean you live at a remote location ?. What has helped me was trying to keep fit no matter what, for you that could mean simple exercises at home due to your seizures, keeping your mind active by perhaps reading books etc. So what is your next step after your diagnosis, what treatment has been offered ? What has your specialist surgeon suggested ? Sending you positive thoughts Cheers, Richard
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a week ago
2 Kudos
Hi Cindi, Glad you're ok and pushing through regardles, that's my motto now, just don't stop, push on ahead no matter what and I do. I saw the oncologist this morning, the next round of treatment starts on the 24th, a bit over a weeks time, 3 treatments over 3 weeks, then a break until mid June, he warned me that these 3 treatments will be intense and may put me out of action for a bit, no matter, just have to wait n see but i wont stop my training. My face looks quite nasty since the plastic surgery, I have to leave it undressed now and I'll see the surgeon next week, I'll send you a couple of pics via messaging. Now having a colonoscopy and gasoscopy in April 24th, Dr has some concerns, " Bring it on i say" haha. Take care and I hope the tiredness goes soon. Lots of hugs, Richard xxx
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2 weeks ago
1 Kudo
Hi Cindi, Jennifer I'm doing ok, its been 6 days since my nose surgery, the surgeon removed 25% of my nose with skin grafts to repair and fill the huge gap left by the cancer removed, its certainly been painful and challenging, however I've been taking moderate pain relief to get me through, 2 anesthetics in one week was also a challenge, I've been very washed out but today has been good and i feel quite normal, had a 4 km walk this morning and had a workout with light weights. The dressing is driving me nuts, there is tape all over my face and with the humidity here it hasn't been pleasant, i can't wait to have the dressing changed on Thursday. Tomorrow i see another specialist skin surgeon for the removal of the SCC's near my eyes and hairline, just local anesthetic for these then Friday back to the Oncologist to work out a start date for my next treatment immunotherapy, not as intense this time though. I hope you and Jennifer are well, I've been thinking about you both. Wishing this year will be great for us. Take good care, Talk soon. Richard 😘😘xxoo
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2 weeks ago
1 Kudo
Hi Jennifer, Wow, I am so so pleased to hear that news, time to celebrate 🎉🎉🎉, its like such a huge weight lifted from your shoulders, time to relax now without the worry, go for that swim 🙂, its been a great week for both of us, and so much to look forward to now. We'll keep in contact. Take care and you will still be in my thoughts. Richard 😘😘
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2 weeks ago
1 Kudo
Hi Cindi, Well its Fantastic news for me, the results from the cystoscopy on Monday were cancer free, no visual cancer in the bladder at all, together with the 3 separate urine tests done 2 weeks ago, no cancer cells in the urine tests. Its crazy though I'm still getting bladder pain, the Urologist thinks it could be from the immunotherapy that I've had, but I'm so so happy, my next immunotherapy starts in 2 weeks for 3 treatments over 6 weeks, then 6 weeks after that another cystoscopy. Tomorrow its my nose surgery and next week it's the SCC's to be frozen off, then hopefully I'll be cancer free for the moment. How are you ? and how are you both feeling ?. I've been thinking about you and Jennifer wishing you both to be well. Sending you both hugs. Richard xx
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4 weeks ago
2 Kudos
Hi Cindi, I am going ok, trying to keep it all together and press on forward, the skin cancer surgeon operates on me on the 6th feb, a 1 inch section of my nose needs to be removed because of the BCC that is quite deep, these things have roots that extend down, anyway some plastic surgery and I should have some sort of a nose, which will take about 6 weeks to heal and about a year and it won't be noticeable, a number of scc's which I will need to have frozen off by another skin specialist a week later. My bladder is really sore, I've rang my urologist and oncologist to talk about it, however I just have to wait till the cystoscopy on the 3rd of Feb, I'm not confident now as both have said I shouldn't have pain by now, and no meds reduce the pain either !. Just wondering what's going to be next. I push on with my walking and gym work irrespective of the pain. It all takes so long to get answers, you're right about the waiting , anyway I just have to be patient. I really hope the biopsy they took from you is nothing sinister, but keep me informed. Take care, I'll be thinking about you. Richard xx
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a month ago
1 Kudo
Hi Jennifer, Just thought I would check in with you to see how you're going ?, and hope your Xmas was good too. I'm so glad that your husband is there for you every step of the way, you must be so proud of him just to step in and do what needs to be done, thats real Love ❤. I'm the same as you, just waiting till the 3rd Feb to see if there is anything inside growing, I'm a little worried as my bladder has pain from time to time every day...it's probably because its still healing from the immunotherapy and I'm exercising. I have my appointment with the skin cancer surgeon tomorrow, it's been brought forward from mid February thank goodness, just another thing on my plate I want fixed and done asap, I just looking forward to a time when my body doesn't need fixing, although it is getting older now, with high kms. I'm keeping fit , working out nearly each day and really pushing myself to the limit, walking, lifting light weights etc etc, all this makes a huge difference to my general well being and mental health so I can stay strong and positive. Let me know how you're going, I hope you're ok too. Wishing you a great year this 2025. Take good care xx
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a month ago
2 Kudos
Hi Cindi, I'll be thinking about you and hoping your cystoscopy will be all clear 🤞, please let me know. I was the same with the tiredness and I think you're right about the body needing time to heal. I've been hydrating to the max, slow deep breathing exercises and really pushing myself to the extreme with the fitness every day, it's working for me and I'm determined to become super fit for the next round of immunotherapy. Stay strong and positive 💪🙂 Take care xx
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a month ago
2 Kudos
Hi Cindi, Great to hear from you, hope Xmas was good for you and family. I'm ok thanks, I'm just waiting to see the plastic surgeon specialising in skin cancer on February 14 to arrange body scan and a surgery date. Feb 3rd, bladder look n see in hospital, 🤞hopefully nothing more has appeared, my bladder is still sore from the immunotherapy treatment that finished on December 16th, oncologist says depending on feb 3rd my treatment will resume late Feb. Immunotherapy side effects have just about gone now, and I feel quite normal 🙂, walking 4-5km a day and lifting light weights in workouts too, I'm feeling good. How are you going ? xx
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December
1 Kudo
Hi Jennifer I hope you had a good Christmas and spent some quality time with family. I truly wish that you will be better with all that has been going on over the last 12 months in 2024. And 2025 will be a turnaround for you so you can be better and healthy I will be be thinking positive thoughts for you all the time. I will be going into hospital on feb 3rd, and resume my treatment 2 weeks after that Sadly for me, I've just found out that I have melanoma on my nose, and BCC's in many other locations, all which have only just surfaced in the last 6 weeks, my plastic surgeon will be attending to those in late January, I will be ok, I just have to be positive. Love and hugs Richard xxx
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