December 2012
Debbiem76
Christmas is a very trying time of the year ,I see so many people joyous as they should be and yet we struggle daily and wonder is this the last xmas we will see if you are a patient, and our loved ones the carers the mums the dads the friends the children also silently wonder, it can stir memories of old I can't imagine what you would be going through each of us suffer differently but can certainly feel for you at this time I was once told we are all going to die some sooner some later i just happen to maybe the one who goes sooner Once I got my head around that life took on a different meaning and I take it as it comes but Cancer still Sucks
kj
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December 2012
Pamela
Thanks for that information yes that's why I am on targin to help with constipation however after my Whipple surgery I have tended to go both ways it has really upset my bowel and digestive system but I also need endone for the pain one day I can eat a food but the next time I can't face it so my diet is all over the place very frustrating for my wife
Rubes the point I was I was trying to make was I should have started those medications sooner for a better quality of life.
kj
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December 2012
Rubes
Definitely did not mean it in that way, so sorry if it came across that way I was not even thinking of your dose what I meant was we all take as much medication as is needed to make life more comfortable for us with pain management, a doctor would not prescribe a dose you did not need in my own experience ,so what ever dose helps is the way to go, I too am terminal so It does not matter, but I now take it sparingly as I probably am in for withdrawal symptoms after surgery if they are successful in reducing my pain with surgery as I won't need as much medication good luck with your withdrawal symptoms receding
kj
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December 2012
I am on endone and targin I resisted taking these tablets for a long time thinking I could live with the pain I am a male I sometimes make dumb decisions,also thinking I may become addicted. I also get constipated of which fluctuates to diaoreah which is part of my illness in the end I started Taking these medications and they take the edge off my pain and my quality of life has improved I only take when needed I am having surgery in the new year which hopefully will improve the pain so I am now aware of the side effects of sudden withdrawal.Maddie can understand the reasons you took them thanks for the information everyone
kj
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December 2012
Lillipilli
I am glad that you sought help even it the results are mixed,Every path starts with your first footstep you take and the thoughts you feel,so best wishes to you at this time with your feelings and one step at a time
kj
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December 2012
maddie86
Reads like your grief is overwhelming you, I know this sounds like a cliche but please consider going to your GP hopefully they can point you in the right direction so can receive whatever help you need at this terrible time in your life.Really feel for what you are going through cancer sucks
kj
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December 2012
melz
I must admit I do not know much about papillary tumor I done some reading on it yes it is very rare and whipple is an option for you I was diagnosed quite quickly as I went Yellow and was very sick my tumor was in the head and the bile duct blocked hence the yellowing of me, when I awoke from the whipple I had tubes coming out of my tummy some are there for weeks to drain after surgery the pain is controlled by the medications and you will be in and out of a haze so don't worry to much about the pain they will have a pain management team looking after you ,don't be afraid to press the button, the sooner you are up and moving the better it will be bearable you are younger and will probably recover quicker it is major surgery but you will surprise yourself how you adjust.One tip I can give is when you eventually start eating ask for a stool softener as you will get constipated and don't strain yourself I know from my own experience, as to how long you will be in hospital depends on your recovery,don't worry about asking questions if I can answer them I will, I realize this all can be frightening so keep your spirits up it is a lot to take in at this stage of your life
kj
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December 2012
melz
It is terrible to be going through this at your age, It is natural to be scared, Have confidence in the ability of your medical team to help you come through your surgery.If you have any specific questions relating to whipple just ask and If I can answer them I will, hope all goes well with your surgery will be thinking of you on Friday
kj
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November 2012
Here I am 27 months after whipple surgery and still going, after being diagnosed terminal after surgery,so I just keep plodding on I have good and bad days like everyone, but I enjoy life so with life comes hope
kj
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November 2012
Rubes1984
Fantastic news congratulations great way to start married life
kj
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