Great to hear he is doing well. My husband had his two year anniversary since diagnosis this week - we too seem to be ok at the moment and have just returned from 2 weeks in Bali. It's nice to share happy moments - enjoy it ! Jo ... View more

Hi Rarsie - welcome to the group that none of us signed up for ! That being said at times this forum has been my sanity. My husband has been battling his GBM 4 for 2 years thisI month - he too talks about being around for the next 20, he is 49 years old. I go to every medical appt with him and often have a list of questions I'm not afraid to ask. We are lucky in that when David was strong enough he returned to work in a somewhat limited capacity & I truly believe this often gives him a reason to get going each day. We gave had recurrence of tumour & had stereotactic radiation while we are continuing towards our 18th dose of temodal. This our oncologists suggests will be our last doseT this month as his body needs the rest - then another scan in May. We seem to live our life in 12 week cycles between MRIs. It is hard of that there is no doubt and I personally often hate every moment but then tomorrow is another day. It's either us planning our lives where we can or letting the cancer call the shots - not while I can help it ! We are even away on holidays at the moment with our boys - making good memories is a way I look at it . Back to the oncologist on the 20th which is back to reality - even though we have the most aggressive of brain tumours (I say we because we are all effected) in some ways we have been so fortunate with what we have been able to achieve in the last 2 years. I am the organizer in the family & that's what I keep doing - just to keep us going & to have something to look forward too. I do understand though that this won't last forever - sometimes I would like to know how long we have though. Plz stay in touch - vent, get angree, ask questions - anything that feels right - you wont be judged here. Nite ... View more

Hi Rarsie - welcome to the group that none of us signed up for ! That being said at times this forum has been my sanity. My husband has been battling his GBM 4 for 2 years this month - he too talks about being around for the next 20, he is 49 years old. I go to every medical appt with him and often have a list of questions I'm not afraid to ask. We are lucky in that when David was strong enough he returned to work in a somewhat limited capacity & I truly believe this often gives him a reason to get going each day. We gave had recurrence of tumour & had stereotactic radiation while we are continuing towards our 18th dose of temodal. This our oncologists suggests will be our last doseT this month as his body needs the rest - then another scan in May. We seem to live our life in 12 week cycles between MRIs. It is hard of that there is no doubt and I personally often hate every moment but then tomorrow is another day. It's either us planning our lives where we can or letting the cancer call the shots - not while I can help it ! We are even away on holidays at the moment with our boys - making good memories is a way I look at it . Back to the oncologist on the 20th which is back to reality - even though we have the most aggressive of brain tumours (I say we because we are all effected) in some ways we have been so fortunate with what we have been able to achieve in the last 2 years. I am the organizer in the family & that's what I keep doing - just to keep us going & to have something to look forward too. I do understand though that this won't last forever - sometimes I would like to know how long we have though. Plz stay in touch - vent, get angree, ask questions - anything that feels right - you wont be judged here. Nite ... View more

Hi Rarsie - welcome to the group that none of us signed up for ! That being said at times this forum has been my sanity. My husband has been battling his GBM 4 for 2 years this month - he too talks about being around for the next 20, he is 49 years old. I go to every medical appt with him and often have a list of questions I'm not afraid to ask. We are lucky in that when David was strong enough he returned to work in a somewhat limited capacity & I truly believe this often gives him a reason to get going each day. We gave had recurrence of tumour & had stereotactic radiation while we are continuing towards our 18th dose of temodal. This our oncologists suggests will be our last doseT this month as his body needs the rest - then another scan in May. We seem to live our life in 12 week cycles between MRIs. It is hard of that there is no doubt and I personally often hate every moment but then tomorrow is another day. It's either us planning our lives where we can or letting the cancer call the shots - not while I can help it ! We are even away on holidays at the moment with our boys - making good memories is a way I look at it . Back to the oncologist on the 20th which is back to reality - even though we have the most aggressive of brain tumours (I say we because we are all effected) in some ways we have been so fortunate with what we have been able to achieve in the last 2 years. I am the organizer in the family & that's what I keep doing - just to keep us going & to have something to look forward too. I do understand though that this won't last forever - sometimes I would like to know how long we have though. Plz stay in touch - vent, get angree, ask questions - anything that feels right - you wont be judged here. Nite ... View more

Hi Rarsie - welcome to the group that none of us signed up for ! That being said at times this forum has been my sanity. My husband has been battling his GBM 4 for 2 years this month - he too talks about being around for the next 20, he is 49 years old. I go to every medical appt with him and often have a list of questions I'm not afraid to ask. We are lucky in that when David was strong enough he returned to work in a somewhat limited capacity & I truly believe this often gives him a reason to get going each day. We gave had recurrence of tumour & had stereotactic radiation while we are continuing towards our 18th dose of temodal. This our oncologists suggests will be our last doseT this month as his body needs the rest - then another scan in May. We seem to live our life in 12 week cycles between MRIs. It is hard of that there is no doubt and I personally often hate every moment but then tomorrow is another day. It's either us planning our lives where we can or letting the cancer call the shots - not while I can help it ! We are even away on holidays at the moment with our boys - making good memories is a way I look at it . Back to the oncologist on the 20th which is back to reality - even though we have the most aggressive of brain tumours (I say we because we are all effected) in some ways we have been so fortunate with what we have been able to achieve in the last 2 years. I am the organizer in the family & that's what I keep doing - just to keep us going & to have something to look forward too. I do understand though that this won't last forever - sometimes I would like to know how long we have though. Plz stay in touch - vent, get angree, ask questions - anything that feels right - you wont be judged here. Nite ... View more

Hi Rarsie - welcome to the group that none of us signed up for ! That being said at times this forum has been my sanity. My husband has been battling his GBM 4 for 2 years this month - he too talks about being around for the next 20, he is 49 years old. I go to every medical appt with him and often have a list of questions I'm not afraid to ask. We are lucky in that when David was strong enough he returned to work in a somewhat limited capacity & I truly believe this often gives him a reason to get going each day. We gave had recurrence of tumour & had stereotactic radiation while we are continuing towards our 18th dose of temodal. This our oncologists suggests will be our last doseT this month as his body needs the rest - then another scan in May. We seem to live our life in 12 week cycles between MRIs. It is hard of that there is no doubt and I personally often hate every moment but then tomorrow is another day. It's either us planning our lives where we can or letting the cancer call the shots - not while I can help it ! We are even away on holidays at the moment with our boys - making good memories is a way I look at it . Back to the oncologist on the 20th which is back to reality - even though we have the most aggressive of brain tumours (I say we because we are all effected) in some ways we have been so fortunate with what we have been able to achieve in the last 2 years. I am the organizer in the family & that's what I keep doing - just to keep us going & to have something to look forward too. I do understand though that this won't last forever - sometimes I would like to know how long we have though. Plz stay in touch - vent, get angree, ask questions - anything that feels right - you wont be judged here. Nite ... View more

Hi Rarsie - welcome to the group that none of us signed up for ! That being said at times this forum has been my sanity. My husband has been battling his GBM 4 for 2 years this month - he too talks about being around for the next 20, he is 49 years old. I go to every medical appt with him and often have a list of questions I'm not afraid to ask. We are lucky in that when David was strong enough he returned to work in a somewhat limited capacity & I truly believe this often gives him a reason to get going each day. We gave had recurrence of tumour & had stereotactic radiation while we are continuing towards our 18th dose of temodal. This our oncologists suggests will be our last doseT this month as his body needs the rest - then another scan in May. We seem to live our life in 12 week cycles between MRIs. It is hard of that there is no doubt and I personally often hate every moment but then tomorrow is another day. It's either us planning our lives where we can or letting the cancer call the shots - not while I can help it ! We are even away on holidays at the moment with our boys - making good memories is a way I look at it . Back to the oncologist on the 20th which is back to reality - even though we have the most aggressive of brain tumours (I say we because we are all effected) in some ways we have been so fortunate with what we have been able to achieve in the last 2 years. I am the organizer in the family & that's what I keep doing - just to keep us going & to have something to look forward too. I do understand though that this won't last forever - sometimes I would like to know how long we have though. Plz stay in touch - vent, get angree, ask questions - anything that feels right - you wont be judged here. Nite ... View more

Hi Rarsie - welcome to the group that none of us signed up for ! That being said at times this forum has been my sanity. My husband has been battling his GBM 4 for 2 years this month - he too talks about being around for the next 20, he is 49 years old. I go to every medical appt with him and often have a list of questions I'm not afraid to ask. We are lucky in that when David was strong enough he returned to work in a somewhat limited capacity & I truly believe this often gives him a reason to get going each day. We gave had recurrence of tumour & had stereotactic radiation while we are continuing towards our 18th dose of temodal. This our oncologists suggests will be our last dose this month as his body needs the rest - then another scan in May. We seem to live our life in 12 week cycles between MRIs. It is hard of that there is no doubt and I personally often hate every moment but then tomorrow is another day. It's either us planning our lives where we can or letting the cancer call the shots - not while I can help it ! We are even away on holidays at the moment with our boys - making good memories is a way I look at it . Back to the oncologist on the 20th which is back to reality - even though we have the most aggressive of brain tumours (I say we because we are all effected) in some ways we have been so fortunate with what we have been able to achieve in the last 2 years. I am the organizer in the family & that's what I keep doing - just to keep us going & to have something to look forward too. I do understand though that this won't last forever - sometimes I would like to know how long we have though. Plz stay in touch - vent, get angree, ask questions - anything that feels right - you wont be judged here. Nite ... View more

Hi Rarsie - welcome to the group that none of us signed up for ! That being said at times this forum has been my sanity. My husband has been battling his GBM 4 for 2 years this month - he too talks about being around for the next 20, he is 49 years old. I go to every medical appt with him and often have a list of questions I'm not afraid to ask. We are lucky in that when David was strong enough he returned to work in a somewhat limited capacity & I truly believe this often gives him a reason to get going each day. We gave had recurrence of tumour & had stereotactic radiation while we are continuing towards our 18th dose of temodal. This our oncologists suggests will be our last dose this month as his body needs the rest - then another scan in May. We seem to live our life in 12 week cycles between MRIs. It is hard of that there is no doubt and I personally often hate every moment but then tomorrow is another day. It's either us planning our lives where we can or letting the cancer call the shots - not while I can help it ! We are even away on holidays at the moment with our boys - making good memories is a way I look at it . Back to the oncologist on the 20th which is back to reality - even though we have the most aggressive of brain tumours (I say we because we are all effected) in some ways we have been so fortunate with what we have been able to achieve in the last 2 years. I am the organizer in the family & that's what I keep doing - just to keep us going & to have something to look forward too. I do understand though that this won't last forever - sometimes I would like to know how long we have though. Plz stay in touch - vent, get angree, ask questions - anything that feels right - you wont be judged here. Nite ... View more

Hi Terese - is that new growth with the MRI this week ???? Jo ... View more