Let's hope - excuse expression but a bitch of a disease ! Will get results of our MRI today - everyone anxious ... View more

Thx Mands - wil take all the strength that comes my way ! I sometimes think in a way I am preparing myself for the inevitable (please don't think I am giving up but it is the worst cancer as we know)because I am going to be the one who is left. I use to worry enormously but I have now made peace with the fact that my worrying will not change the outcome - I still have sleepless nights but I suppose that is to be expected. My husband is back on chemo this week - his second last dose of the final round before Avastin. We have our next scan in June. I am finding enormous support through this website and am so grateful I came across it. ... View more

Thank you for your msg - I so understand all you say. I try and not worry about the 'if's' as I know I have no control there. We are prepared practically if the worst happens - that's just the type of people we are. We have a good relationship where we can talk about these things openly - sometimes though I am mindful as I never want it to seem I am giving up on him. We have just shared a beautiful imroptu holiday together with our boys - good memories to store. I suppose it is always in th back of my mind that if the time comes and we are no longer able to fight this what sort of pain and discomfort he will be in - it is such a cruel disease. I appreciate your views and will read your post again to help me to continue to move forward xx ... View more

Thanks - but I am not really brave or strong - sadly I just think that may be part of the coping mechanism for when everything hits the wall. I do try to be positive most of the time but that is more of a front - please don't misunderstand me as I am not giving up but the prognosis for this cancer is definitely not good. My biggest worry is that the memories of our lives will be imprinted with the 'cancer phase' and that it will be harder to remember the good times - though I am sure if it comes to that like anything we will just have to look harder and the memories will surface. ... View more

I understand everything that you say - even though we don't have 'the cancer' its almost like having it as you live through it each and every day - there is just no escape. I am so pleased to hear you have had some good news and hope that the next tests are 'all clear' - its what we all strive for. My husband has had two surgery's, radiation, chemo, sterotactic radiation and now more chemo - but as you say whatever it takes hey ! Good luck and keep posting how things are going - its just god to vent somewhere sometimes and good news is nice to share. ... View more

Re: Gbm grade 4 brain tumour My husband ,aged 47 was diagnosed with a GBM grade 4 in April 2010. He awoke with a stiff/sore leg, which progressively became weaker - 36 hours later we received the diagnosis of a brain tumor . He has had surgery, rehabilitation, radiation, chemotherapy & also stereotactic radiation. The initial tumor was on his right side , the second tumor presented below the original site 3 months after April surgery. We were advised that surgery was too risky on the second so continued with chemotherapy & 5 months later had the stereotactic procedure. My husbands left side movement is effected (has been since April surgery) and seems to be gradually deteriorating - he obviously cannot drive but continues to work as this is an important positive in this world of which he now feels he has little control. We have an amazing team of specialists caring for us and our oncologist and GP support us enormously - in that we are so fortunate. That being said though I hate it - I hate that this tumor has taken over control of our lives & changed the man I married. I feel so selfish sharing this because I know my husband hates it too - my greatest fear is what will happen & how. On the outside I am trying to remain positive & I haven't given up hope - but my husband and I are both realistic and understand that this is what will claim him - when is a anyones guess . I am not scared of being on my own but I am terrified of how this may effect our two amazing teenage sons. I seem to have garbled on but it does feel better & reading your posts have inspired me to contribute so for that I thank you ... View more

How is your husband progressing ? My husband too has a GBM level 4 , diagnosed in April 2010. Jo ... View more

Re: Gbm grade 4 brain tumour My husband ,aged 47 was diagnosed with a GBM grade 4 in April 2010. He awoke with a stiff/sore leg, which progressively became weaker - 36 hours later we received the diagnosis of a brain tumor . He has had surgery, rehabilitation, radiation, chemotherapy & also stereotactic radiation. The initial tumor was on his right side , the second tumor presented below the original site 3 months after April surgery. We were advised that surgery was too risky on the second so continued with chemotherapy & 5 months later had the stereotactic procedure. My husbands left side movement is effected (has been since April surgery) and seems to be gradually deteriorating - he obviously cannot drive but continues to work as this is an important positive in this world of which he now feels he has little control. We have an amazing team of specialists caring for us and our oncologist and GP support us enormously - in that we are so fortunate. That being said though I hate it - I hate that this tumor has taken over control of our lives & changed the man I married. I feel so selfish sharing this because I know my husband hates it too - my greatest fear is what will happen & how. On the outside I am trying to remain positive & I haven't given up hope - but my husband and I are both realistic and understand that this is what will claim him - when is a anyones guess . I am not scared of being on my own but I am terrified of how this may effect our two amazing teenage sons. I seem to have garbled on but it does feel better & reading your posts have inspired me to contribute so for that I thank you ... View more

My husband ,aged 47 was diagnosed with a GBM grade 4 in April 2010. He awoke with a stiff/sore leg, which progressively became weaker - 36 hours later we received the diagnosis of a brain tumor . He has had surgery, rehabilitation, radiation, chemotherapy & also stereotactic radiation. The initial tumor was on his right side , the second tumor presented below the original site 3 months after April surgery. We were advised that surgery was too risky on the second so continued with chemotherapy & 5 months later had the stereotactic procedure. My husbands left side movement is effected (has been since April surgery) and seems to be gradually deteriorating - he obviously cannot drive but continues to work as this is an important positive in this world of which he now feels he has little control. We have an amazing team of specialists caring for us and our oncologist and GP support us enormously - in that we are so fortunate. That being said though I hate it - I hate that this tumor has taken over control of our lives & changed the man I married. I feel so selfish sharing this because I know my husband hates it too - my greatest fear is what will happen & how. On the outside I am trying to remain positive & I haven't given up hope - but my husband and I are both realistic and understand that this is what will claim him - when is a anyones guess . I am not scared of being on my own but I am terrified of how this may effect our two amazing teenage sons. I seem to have garbled on but it does feel better & reading your posts have inspired me to contribute so for that I thank you ... View more