Sometimes I just wonder where life will lead us and how long the journey will take. My husband is approaching the 2 year anniversary of his GBM diagnosis - its been a bumpy road but we have also had normality and in some ways I feel we are lucky that this has been the case. He still works , yet can't drive, we go out and socialise and accommodate our life to his limited mobility, we spend time together and time apart, we argue - all normal ! He is about to commence his 19th dose of Temodal with one more to follow - then the oncologists suggests we stop as his body needs the rest. We will have an MRI then to see what is happening - the last few have been stable , tumour still there but growth unchanged ............. but you just know it is lurking there, it feels as though it is just waiting to pounce and catch you off guard. Normality is our focus, and I think we are doing well. There are the bad days but there are also the good - we are off on holidays in 3 weeks and that is our focus, can't wait ! ... View more

We met with oncologist today following the MRI yesterday. It would appear that there is still an area of concern, but that remains unchanged since previous MRI in March - if anything swelling has reduced slightly which is a little contradicting given my husbands increased weakness on left side. Oncologist is of the opinion that there is more than likely tumour still present there and that may be accounting for the increased weakness.  His recommendations short term are as follows :- -Commence Temodal (5 day dose) -Increase dexa -Commence bactrum -Next consult with oncologist on June 3rd He did also speak with us regarding treatment of Avastin - I expect this will be an option if tumour is more evident on next MRI (due June 23rd) Our oncologist was great and answered all the questions we had - we actually expected that MRI would be inconclusive so will just see how things go ! ... View more