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May 2011
November 2016
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February 2013
Hi Tammy
my husband had his dex stopped about 3 months ago, he had no side effects at all. Sadly he is still alive with no quality of life at all. I pray hourly that God would call him home now.
I will keep you and your man in my prayers.
Hugs Terese.
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February 2013
Dear Jobeth
I am so sorry if my post upset you. It is an impossible situation we find ourselves in. Hope they will live longer then as they start to show the disabilities of the disease we begin to wish for their journey to end. Peace for them and ourselves.
I am a bag of negativity and misery. I hope your journey through this is kinder than ours.
Hugs Terese.
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February 2013
Thank you Trish and Michele
Trish I hope you are coping ok. It is a truly wicked and cruel form of cancer. Unless you have walked this path you have no idea the strain it puts on the partner. I am at the end of my rope.
Terese
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February 2013
Stuart had his mri on Monday. Tumour has doubled and is now 7x5x4. There is also a new tumour in the left posterior temporal/parietal lobe, it is 1.5cm.
I am almost relieved that there is new growth and the end is approaching even if it is unbearaly slow.
It is agony to watch him now. Can't walk, no communication, incontinent. Uninterested in anything around him, Headaches increasing, morphine pump being put in later this week. Often anxious but we can't understand him to know why, thats if he even knows.
He has been on respite for the last 2 weeks and has 4 more to go but I think it will be permanent. I just can't manage anymore.
Life is so tough for some of us.
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February 2013
Hi Trish
my husband, Stuart, is having an mri tomorrow too. He was dx Sept 2010. He has declined so much now he is in a nursing home and we are having the mri to try understand why he is still here. It is cruel to see him like this, no speech, no mobility, incontinent.
Enjoy your time together as much as you can.
Hugs Terese.
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January 2013
Hello Emma
My husband has a brain tumour also. It is an awful journey.Stuart has a GBM and is terribly disabled with it to the point I just wish it was over. Sorry that is so depressing but thats my reality.
Terese.
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January 2013
Hello again
In our case we were meant to pay for the first 4 cycles and if the mri at that time showed improvement, which it did, then the drug company paid for the rest.
We were really blessed as the hospital funded the first 4 treatments.
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January 2013
Hi Trish
We are on the same roller coaster as you. My husband also had blood clots in his calves and had to have clexane injections for more than a year, They are very easy to do, you will do it without trouble I am sure.
Hugs Terese.
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