Hi Netty, I thought and wanted my son at home, never did I think he would pass away in hospital, but thats exactly what happened and it was ok, they the pallitive care team are amazing people just talking to them made me cry they are so caring and I found it took the stree off the family so we could enjoy the last week God Bless you Netty rarsie ... View more

Hi Daniel, Great words, but not everyone has or has to have your outlook. People with cancer do the best they can and if that is worrying, so be it, you can not tell people how to live their lives, but you certainly can go with whatever makes you happy All the best rarsie ... View more

Hi Guys, I know how you feel about the quickness as with you peanutz, and the horrible way they are before there last breath. We think we know how its going to end but its such a individual thing with GBM. I know the first words I said after the Doc said he has gone was" Thank God " ( and I am not religious )the hardest for me was to see my beautiful boy not capable to do anything for himself and the pain until they had to Med him till he couldnt respond. How cruel, I feel both your pain peanutz and Geoff. Nothing more I can say Sandra (rasie ) ... View more

Maddie, I know when they started morph by injections and those patches my son didnt have too long, depends on the dosage of Morph, it slows the breathing down. Hope I helped Sandra (rarsie) ... View more

When hard ground is broken up with a good shovel, something of value can grow in it. Today explore one aspect of your thinking that has become so hardened it undermines your capacity to be flexible, creative, and happy. Ask yourself, have I placed such extreme demands on myself that work against my well being? Have my goals become so rigid that I fail to imagine new possibilities? By loosening up your thinking you will prepare for a new opportunies to grow Regards Sandra ... View more

Hi exhausted, I do wish nobody else had to go through this monster, but you have to, and will do. I thought we had more time than we did, Keps MRI 6weeks before, told it was back and 6 weeks later he took his last breath. So quick.The doctors told me from the report, it was amazing how fast this horrid thing grew. I so hate the word GBM. Hold in there Terese because at the end you will thank god he is out of his misery then you will deal with the grief Sandra ... View more

Hi peanutz, Only a week between Denis and Kep. keep going, dont try to be strong let it come and then let it go, all the best to you ... View more

Hi Nat, Thanks for that info will have a look. Kep my son had a week in hospital as he had a couple of seizures out of the blue. Started the CEE NU yesterday waited for him to be sick but never happened. He has been told by the doctor he is dying didnt take it too good but still is in denial most of the time said " the doctor isnt going to f...ken tell me when I am going to die, he had a emotional morning on Saturday, I found it hard to cope with the emotional side to him, it just upset me so much I feel I am no use to him. How do you cope with it Regards Sandra ... View more

My thoughts are with you, and I hope your next journey wont be as hard as the last journey although you had Gary beside you, god bless you and take care of yourself Thank you for been a friend Sandra ... View more

Hi Peanutz, The Carboplatin you talk about is that a Chem??the CEENU is a Chemo tablet which is very lethal Love to hear back from you and hows things going with your hubbys appoinments and such Regards Sandra ... View more