Hi Mel, Sorry for your situation. Live one day at a time YES. I have found and I know everyone is different, the more research I have done about my sons tumor the more I have been able to accept, when talking doctor specialist jargon its good to show them you know what they are talking about and can question them. I hope you are able to find support from family and friends Keep on keeping on Regards to you and your little girls Sandra ... View more

Hugs coming your way, make me siver to think what we all have to endure, lets hope he doesnt linger too long, my son has improved with the Dex, what next thinking of you Sandra ... View more

Hi peanutz You know what makes me mad, when my friends are in need I am the first cab off the rank. They all say "let us know when you need me for anything " then when you do its oh sorry I cant but tommorrow I can """WELL HELLO I DONT NEED YOUR SUPPORT TOMMORROW""" True friends are like diamonds special but rare, false friends are like pebbles found everywhere Sandra is thinking of you take care ... View more

Hi Peanutz The coordinator is a RN at our local hospital she volunteers her time, lovely girl and when she is off work then the nurse educator takes over. We are very lucky, we also have a coordinator at our Chemo hospital in Toowoomba but she is no where like the local one. Start jumping up and down Sandra ... View more

Hi Hopeful, That was great what you had to say, you are a very strong lady. I will be in contact with you at a later date as yes I am very interested in the late stages regards Sandra ... View more

Hi peanutz, We live in a 3,000 population country town in S.W. Queensland and we have so much support from our Coordinator which our public doctor arranged for us as I had been having problems like you with the city hospitals with f...ing the MRI s and braintumor clinic appointments. Now all I do is send my Coordinator an email for what ever needs doing and bang.. it is done. Are you recieving any kind of Pallitive care from a team CRY, SCREAM BUT LET YOU BE HEARD you need assistance Hope it comes soon Sandra ... View more

Hi peanutz, I have been trying to tell my other children, spend time with your brother NOW not when he is unable to share with you, bugger work, you will manage as there are a lot of options there, less worlk hours, centrelink, do you have a coordinator if so she can help you with many things, you poor girl just try to make the time the best you can My regards Sandra ... View more

Hi Hammy, MRI no good the tumor has gone deeper into the brain, can stay on the Chemo. Ongoligist said Chemo must be helping otherwise there woulkdve been more growth, cant operate as it has gone in. hope you guys have better results and must agree I would hate the waiting the few hours we do wait is long enough, bit at loss now cant really work out how I am feeling, there are many emotions and having to deal with them all at once is all too much, but as I always have believed we have had our son longer than may and he hasnt had much of a disability, we have been blessed All the best to you and hubby keep in touch Regards Sandra ... View more