Today I had my first PET scan, Previously I have been having CAT scans. Next week I see Professor Morris for Radio Ablation. At least he has agreed to seeing me seeing me. He has some reservations as I have 13 tumors on the liver so I just hope he will treat me. I am feeling that my liver tumors are on the move again, as I have some pain in that region, and that, combined with my rising CEA, has me worried. The following week I see my oncologist for a review. It is hard to believe that chemo has knocked out the cancer in the bowel , but the liver tumors are more resistant Dunedigger ... View more

Hi Mihalo, Thanks for your reply. I have fatigue and pain but I can't pin it on any one thing. I am fit & well after stopping folfox6 6 months ago but continue on Avastin. Sometimes I think I am having a 'flashback' of Folfox6 as though it is still coming out of my system. I still have moderate neuropathy in legs and feet, fortunately nowhere else. I have been fit and active all my life and now I hav lost most of 'my get up and go'. And when I do get it it does not last long. I have just had another shot of Avastin, and it did not seem to affect me so much as last time. There are so many variables I can't work out what is causing the Chronic Fatigue. Enough of me . . I should feel better tomorrow EDIT: Next day I do feel better. Another story in that . . . Dunedigger ... View more

It is in the news . . . Avastin will be on the 'free' list after the Federal Budget comes down in May. It will cost only $33.00 instead of $$2000. See http://www.news.com.au/story/0,27574,25420920-29277,00.html Copy below: TWO drugs, to treat bowel and breast cancer, will be subsidised to the tune of $600 million in the upcoming federal Budget. The Federal Government will list bowel cancer medicine Avastin on the Pharmaceutical Benefits Scheme (PBS) and extend the free Herceptin program for breast cancer sufferers, The Sun-Herald reports. Listing the drugs will mean new patients suffering advanced bowel cancer will pay about $33 for Avastin, instead of more than $2000. Those suffering metastatic breast cancer will receive a boost with the free Herceptin program to be extended for four years, without which patients would pay about $60,000 a year for the drug. "We are thrilled,'' Breast Cancer Network Australia head Lyn Swinburne told the Herald. The Budget will handed down on May 12. ... View more

Slight change of topic BUT about Avastin. Are there many on this list list that are on Avastin only. Apart from what is written in the literature do other people experience pain or fatigue. I have neen on Avastin now for 12 months but had other chemo for the first 6 months. I don't know whether my problems are caused by Avastin or the previous chemo of 5FU and Oxyplatin. The medical profession don't seem to be a lot of help, they don't seem to know ! Dunedigger ... View more

Hi Louisa, The garden is doing fine.We had lettuce, tomatoes, caspicans ,basil and on another part of the farm the biggest pumpkin patch. Now potatoes, carrots are in. We have hens but the dam things keep digging everything up. Congratulations to all the staff involved in the website upgrade With kind regards, Rex ... View more

Sorry to hear of your diagnosis and prognosis. Don't take the diagnosis lying down. Fight it and fight it again. Chemo will give you time. Oncologist's give you a timeline worst case, and by law must be honest, but with a change in lifestyle and diet you can prolong or even overcome it. However, recovery from cancer is a psychological battle so don't let the oncologist 'point the bone at you'. Get out there and go for it, never say . . . . . . "I give up" Dunedigger ... View more

I had a colonoscopy done on Monday . . . all clear. Now just have to have the liver fixed Dunedigger ... View more

Sorry you did not get any replies before your colonscopy.I have only had one. I took the day off and spent in next to the loo.  No was would I risk going to works etc etcDunegiger ... View more

I have had people ask about being positive. I know it is impossible to remain positive especially when sick from chemo or in pain, but one aspect I have discovered about myself is I  NEVER  doubted that chemo would work for me. I had absolute faith the chemo  would work. I also knew that complementary therapies, diet and lifestyle changes  was an essential part of treatment. Chemo bought me time and remission, and I now am   approaching the end of chemo, the changes I have made will help to remain in remissionI also believe that cancer will never bite me on the bum again. This may be blind faith, but as a hypnotherapist ( in  previous decades ) I know the value of faith is very important. That is not to say that I meditate,  but my attitude is that cancer will not get me, at least not till I'm ready and that won't be till I'm 80, another 20 yearsCheers for nowDunedigger  ... View more

This week I have the blood test that tells me I'm in remission. CEA of 1.7 Ye har. Special thanks to Grace Gawler. I do not plan to have a relapse. Huge diet changes will ensure that. No Sugar, No Preservatives, No Food Colouring and mostly organic foodsDunedigger ... View more