Hi Everyone, Firstly, thanks to everyone for your support both to myself but to other readers. The posting on http://www.cancerconnections.com.au/content/fear-cancer-tumour-returning raises interesting issues. I feel that most people live with the fear for the rest of their life. I now feel that I will have to live with cancer for life, taking drugs that as a result of I am unable to do a quarter of the things I used to be able to do. In the next few years I will have to decide if my past active life style is a thing of the past and I will have to be content with living a sedentary life style. I can dream of picking up where I left of living the dream, but next month . . . . . . I will be a 2 year survivor. Continue the dream. . . . that gives you a reason to beat this confounding disease Dunedigger ... View more

An update . . . Fatigue is still an issue even after 4 1/2 months but I think I may be coming out the other end. However I have had a rising CEA Last Monday I had a CT which showed a small number of tiny tumors in my lungs !. Professor Morris was not worried, he will ablate them if they can't be controlled. We think they grew while I was not having avastin in the period leading up to the liver surgery. However I have started on a low dose of oral 5FU and after 3 weeks my CEA dropped 10% down to 22. So it is all good news. My liver looks tumor free after the surgery and radiation. I have a new luxury camper for my 4WD and have been spending time out in the bush, my love is high country rain-forests on the eastern escarpment of NSW, good therapy ! I remain committed that this 'disease' will not get me even though I will have to live with it for the rest of my life. Dunedigger ... View more

Hi Sharon55, I know this is an old thread, and I may have overlooked it. I have just had liver surgery to remove 11 of the little ( and bigger ) buggers and will be having the same treatment 'just in case'. This is an exciting form of treatment.I am having mine done at St Vincents Sydney in about a months time How did it go for your husband. ? When is the next PET or CAT scan ? Dunedigger ... View more

I had SIRT done 3 months ago as you see from a thread above. We don't think there was any cancer there after surgery, but anyhow. . . . The Radiation really knocked me around and 3 months later I am might be getting over it. I developed Gastric Ulcers as well as a result of the SIRT so have had to manage that as well. The worst part has been the fatigue. For the first two weeks I was quite OK, but then many things became an effort ! I have just had a CT scan and the results are inclusive, I may have to go back on chemo Dunedigger ... View more

Well the SIRT has taken it's toll. I have had fatigue and a feeling of illness for the full 6 weeks. Basically I have felt as bad for the last 4 weeks as if I had just had chemo. However it will be worth it if the radiation mops up the surviving cancer cells. SIRT is so much more powerful than external radiation. Unfortunately I (I We ) still have a business to run and although we are slowly selling parts of the business, it is hard to plan for the future retirement and traveling, not to mention my love of Endurance ( Horse ) Riding. However I don't have time for cancer now and a CAT scan will confirm what my Surgeon said while I was in recovery . . . We think we got it all ! Get on with it and get out there ! ... View more

Hi Everybody. I'm back bigger and better than ever, well in my mind anyhow. Norfolk was fabulous. . A bit of a problem getting up before 10 am but anyway . . Ate our selves silly and broke all my ( self imposed ) diet rules. 4 Days after coming back I had the SIRSpheres internal radiation ( SIRT ) done, with out too many problems. I don't feel wonderful but feel a little better each day, nausea being controlled with a little medication. I will now go back on Avastin and have a CAT scan done in two months. Can't wait for the results. Fingers crossed I'm cancer free. If I am Cancer free, there will be some excited health professionals who have helped me on my way including two Professors. If you are fighting cancer, keep fighting, keep asking questions, and never say die, There are lots of treatments available that you have to search out, that is past being experimental but has not reached mainstream. Yours in the fight ! Dunedigger ... View more

Hi everyone, I finished Folfox6 Last September 2008. The issues in my hands quickly dissipated but my feet are another story. I was told that it would take 12 months for the effects to go away and after that, you had to live with it. As someone else said it is the best alternative. Folfox6 + Avastin + intravenous Vitamin C reduced my liver tumors to almost nothing, which was proved by pathology after I had the rest of the tumors romoved by surgery. Happy days are hear again ! ! ! I am on holidays in Norfolk island dunedigger ... View more

Hi Everyone, I m glad that my ramblings has been an inspiration. I did intend it to be that way some time after I started the thread. Actually, on the old site blogs were not available but it may have been more appropriate to have been a blog, but I'm not going to start now. I know a lot of people who read this will have just been diagnosed and will take heart at my story along with a lot of other people stories. When I was first diagnosed with bowel cancer I could ( just ) live with that and the operation (s) that would take place. However the following week after my CAT scan showed multiple lesions in my liver my ( our ) world fell apart. I was told there was not much hope. It took 12 months before we started to seek surgical opinions. After this, a new world opened up. I have since found another site like this in another country, where surgical options for liver cancer are enormous, but we do have them in Australia, but they don't seem to be well known. I have learn't that many medical professionals don't really know all of the options that are available and remain comfortably in the cocoon of their own world of knowledge. ( This seems to apply especially to Oncologists who just use Chemo, no offense intended to any particular person ) Get out there and ask. If you don't live in the big citys, be prepared to travel to get the treatment you deserve and never stop fighting and asking questions till you get the answer YOU LIKE. Dunedigger EDIT 24/7/09 I am booked into St Vincent's for the SIRS, after all day tests on 3 different scanners. I have also learnt that the professor took about 1/3rd of my liver AND most of it had been killed by Folfox6, Avastin and Vitamin C We are off to Norfolk Island of a week on 2nd August ... View more

Hi Loraleeb I can relate o a stressful event, which would have occurred about the time I developed very early symptoms. It was a human rights issue which our business was VERY unfairly called on to explain, it was more like a kangaroo court. Another event was when a client tried to sue us. My stomach does flips as I write this. The people involved in these cases I still wish them infernal (terminal) cancer Loraleeb, are you on the Macmillan ( English ) website. There are a lot of people there to discuss this Dunedigger ... View more

I expect that statistics are kept on this. I hear of babies born with cancer so cancer is normal in our lives BUT why it it that in the modern world cancer is so much more prevalent ? . Is it because we live in a land of milk and honey or more importantly a land of plenty where cancer never gets starved for nutrition ?. Cancer can be starved and dies as happened to prisoners of war. We now have so much sugar in our diets and cancer thrives on refined sugars. Opps I got off track . . . I certainty don't remember cancer amongst children back in the 1950s and 60s ... View more