Thanks so much for your response 🙂 I am very lucky to be blessed with an amazing little baby, who took everything in her stride & slept when she was suppose to sleep, feed when she was suppose to & smiled when I needed it 🙂 I never had baby blues (which everyone was waiting for considering) I just poured everything I could into her. When waiting for Ben at the hospital during his surgery, I doted on her, I feed, I played, I cuddled, she was the perfect age- I could take her anywhere. I have been thinking about the cancer council - but I just never seem to get there. I really should make it a priority. We did (or sorry I should say Ben did) the Vit c & oxygen treatment at Churchills just after he was diagnosed. The neurosurgeon sent us away with a "wait & see respond" and we clearly did not think we had time to wait & see, so we researched the alternative options & did the treatment for 3 months. It is a costly experience (although don't forget to claim it through tax) It is a hard time for the patient, Ben found it really tiring & also a bit of downer as they all sit around doing the same treatment all for the same reasons. Kind of like doing chemo. It didn't help Ben unfortunately, but I am a big believer of each person has a different response to treatments- so don't let our experience taint you trying anything. All I can recommend is to do your research, there is lots on the internet about vit. c treatments I like the sound of that book & will try & hunt it down. We live in Perth about 10 mins from the city, but know the albany drive well as I have family down that way. If you have any questions about churchill ask away 🙂 ... View more

Thanks Minx- its scary how quickly things get ugly isn't it. One second you think you have tomorrow, and then the next your thinking you won't. I'm sorry Pete didn't get to do letters for your girls, they are very lucky they have such fond memories of him. ... View more

Exactly Minx, I understand the logistics of it, but I just don't understand how it can be so expensive. Just buying more time! ... View more

It's heart breaking & refreshing all at the same time hey! Nice to know that it's still so simple for them. Where as us adults tend to make it much more emotional :D I love doing a blog- it reminds me to write things down. Hopefully one day I'll read all these back & be reminded of the whole situation - & it also keeps me aware of the ups & downs that come along. Thanks PA ... View more

Poor kids 😞 I feel sorry for them, must be so hard to lose your mum at such a vulnerable age. Definitely get in contact with canteen, they can help ... View more

Hi abbeygail, Firstly- sorry you had to join this website, but Welcome :D I can completely understand where you are coming from, cancer itself changes people but Brain cancer removes their ability to care or have emotions like others. And it's so hard, because when they are being arses, and you get angry- you feel bad for getting angry, because god forbid your last conversation be in anger. And deep down you know they don't mean it. Doesn't mean it doesn't still hurt though right? We have lost a number of friends, well, they are still around, but we never see them- and only ever hear from them if we call or msg them. It does make it a lonely time. I have found using the blog on here to be therapeutic, to get out some of my thoughts & feelings but also I might just reach out to someone going through all this crap on their own as well. Share away my friend 🙂 ... View more

Wow- we have quite a few on this site suffering the same/ similar fate. I'm so glad you started this thread :) Hi, I'm Mel & I'm 31. My husband is 36 & has been dx with a grade 2 astrocytoma brain tumour, 19 months ago- which has progressed quite quickly over the last couple of months, indicating change to a GBM. We have 2 awesome girls, 1 x 4 yr old & one 19 month old. Yep- you read right- she's 19 months. The dx came 6 days after she was born. I went from having a husband who worked away, to a husband who now couldn't drive, couldn't work, & is dying. And I have a newborn. I hear you so loudly on the "your so strong", your are right- we have no choice, no option b. We are required to be strong. But I must say, I say "your amazing" to my husband all the time- & that must be the same feeling for him. He doesn't feel amazing, he's just coping- for us, just as I am coping for them. Friends, come & go- sometimes we see them, sometimes we don't. But many have shy'd away from us. I hate seeing old friends, that don't know- or only know he's been dx'd.... cause I'm coping- doesn't mean when I say "he's very sick" "yeah, i'm doing ok considering my husband has a brain tumour" that I won't burst out in sobs & upset myself- that person & feel horrible for the rest of the day. I quite often respond "i'm well- how are you" & completely avoid the conversation. My mum once asked me, why I was not honest about what is actually happening. This question was prompted by my eldest brother, complaining that he didn't know what to do because when he asked if I was ok, I responded yes. I took a breath, and carefully explained to her- if I was to tell you what goes on in my head, or even more so what actually happens in my day to day life- you would be devastated, it would give you nightmares. No one needs to know this stuff, its better to be ignorant than to know this stuff. Could you imagine- Hi, how are you? Hi, well actually I'm pretty upset. I can't seem to get these thoughts out of my head. What thoughts? Can I help? Well, maybe- can you tell me how I am to explain to my 4 year old daughter that the most important male in her life is dying? Oh and can you tell me how to organise a funeral? So that when it actually does happen, & I am so upset I don't have to think about it? How about- Can you tell me how to not get upset whilst watching my once fit & healthy husband, wither away, forgetting things, falling over, sleeping & sleeping & sleeping? OH & last question- for this minute anyway- can you tell me how I am going to cope if my husband dies in his sleep, & I wake to find him gone? Who do I call? What do I do? Do I keep it from the kids & rush them out of the house? With that, that well meaning person is now standing there staring at you in disbelief, wanting to (if not already) cry. ARGHHHHH These thoughts are to be shared with no one that doesn't go through this awful rollercoaster, they don't deserve that pain. We have had good times, & recently (last friday) had bad news of more growth. I am so lucky to have had a normal last 3 months, now it's back to hell. Anyway- enough rambling (at 11pm... gosh I really should go to bed) Symphony- I am in WA as well- what support group are you going to? I have been thinking about attending but too scared that it would upset me too much. I hope all is well for everyone- back to reality. School holidays are over :D ... View more

I am here- 31, with 2 children aged 1.5 & 4. My husband-36- has a GBM & has for 19 months. I will be back tomorrow, to discuss in further. Going to head to bed after a emotional day. Ben's 36th Birthday today! ... View more