December 2013
An update on my post: My porta-cath was removed a few weeks ago in a day-surgery procedure. Very simple, straight-forward and painless; local anaesthesia with something to calm me down (I was almost asleep during procedure).
I'm probably not having another porta-cath inserted at this stage, as iv chemo will most likely stop soon and in the meantime my arm veins are still good.
As for the thrombosis, I am on Clexane (self-injecting daily) for three months.
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November 2013
I had a porta-cath inserted February this year. My last CT scan showed the catheter had migrated and I have thrombosis in the internal jugular vein. I now need to have my port removed and am on blood thinning medication to dissolve any clots.
Has anyone else had a similar experience, i.e. port and IJV thrombosis?
When the port went in I was in a lot of pain and had bruising for a week after (not to mention waking up mid-procedure!). Will the removal be an easier, less painful process?
Has anyone had a port removed and another port inserted?
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October 2013
Thanks Sailor.
Well I had one cycle of carboplatin, nausea was milder than with cisplatin. But when had blood test immediately prior to 2nd cycle, my red cell, white cell and platlet counts were too low to have treatment. This was the first time in approx. 6 months of chemo that this has happened to me. Oncologist did warn be that carboplatin could be tougher on red & white cells. I go back tomorrow to try again for cycle 2.
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September 2013
My oncologist is changing one of my chemotherapy drugs - from Cisplatin to Carboplatin. I have had 10 cycles of Cisplatin with good results. I am a not sure what side effects to expect with the change, does anyone else have experience with both drugs? I will also be continuing with Xeloda, which I have been on for several months.
(Gastro-oesophageal adenocarcinoma with liver metastasis, stage IV.)
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August 2013
Hi Silly,
Thanks for your response - I was interested to read about your rare cancer, ACC is one I had not heard of before.
I wish you all the very best. : )
kathyhtak
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August 2013
Hi Felix
Thanks for the link, I had not previously seen that article - very informative.
kathyhtak
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August 2013
Hi Felix,
Thank you very much for your response. I echo Julie's words and look forward to seeing and utilising the revamped Cancer Connections site when launched.
Kathyhtak
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August 2013
Hi Julie and kj,
Good to hear from others with forgotten cancers; I wish you all the best with your cancer journey.
kathyhtak
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August 2013
Did anyone catch the "forgotten cancers" segment on The Project Tuesday night (20/8/13)? Should be available to view on their website soon. (Also see Cancer Council media release).
Interesting topic. These forgotten cancers generally have poor outcomes; they are are underfunded and we need to raise awareness for funding further research, for better outcomes.
I have one of the forgotten cancers, oesophageal. I would suggest having our own category to select when setting up our profiles in Cancer Connections, rather than lumping us under "Other" might be a good place to start awareness raising!
Who else has one of the "forgotten cancers"?
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August 2013
Hi Shane,
I have inoperable oesophageal cancer too, which as spread to my liver. I have had 6 months of chemotherapy which has reduced size of tumors. But I have no experience with radiation therapy. Can you post an update on how you are going?
Kathyhtak
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