I had a porta-cath inserted February this year. My last CT scan showed the catheter had migrated and I have thrombosis in the internal jugular vein. I now need to have my port removed and am on blood thinning medication to dissolve any clots. Has anyone else had a similar experience, i.e. port and IJV thrombosis? When the port went in I was in a lot of pain and had bruising for a week after (not to mention waking up mid-procedure!). Will the removal be an easier, less painful process? Has anyone had a port removed and another port inserted? ... View more

My oncologist is changing one of my chemotherapy drugs - from Cisplatin to Carboplatin. I have had 10 cycles of Cisplatin with good results. I am a not sure what side effects to expect with the change, does anyone else have experience with both drugs? I will also be continuing with Xeloda, which I have been on for several months. (Gastro-oesophageal adenocarcinoma with liver metastasis, stage IV.) ... View more

Did anyone catch the "forgotten cancers" segment on The Project Tuesday night (20/8/13)? Should be available to view on their website soon. (Also see Cancer Council media release). Interesting topic. These forgotten cancers generally have poor outcomes; they are are underfunded and we need to raise awareness for funding further research, for better outcomes. I have one of the forgotten cancers, oesophageal. I would suggest having our own category to select when setting up our profiles in Cancer Connections, rather than lumping us under "Other" might be a good place to start awareness raising! Who else has one of the "forgotten cancers"? ... View more