Daz finished his treatment 5 weeks ago and is still suffering fatigue so bad he can't hardly move, he sleeps most of the day and all night, is so grumpy and has quit smoking because he can't get up to go outside to smoke. Thank god for for that, properly the only good thing that has come from this. He has started a new drug trial and will get the first treatment in a few weeks after all the tests they need for him to start. The trial is to find the affects of Nivolumba on brain metastasis, it has proven to work well on the lungs so should help his spots on his lungs as well as his brain and dosn't have many side affects so hopefully will not give him much trouble. I hope the positive out weigh the negitive this time. ... View more

It's day 2 of radiation today, it was an early appointment so Daz said his Mum will take him but when it was time to leave she refused to drive him and he went on his own. Not sure why she didn't take him but could be because we went to see his sister last night and they talked about his Mum, so Kym must have called her when we leaft their place. Who knows but it a lousy thing to do I think. I wish Daz had of let me know and I would have taken him. poor Daz dosn't need that sort of thing, he has enough to cope with. So far no side affects. Let's hope it stays that way. ... View more

I am so nervous, my partner Darryn is starting radiation today and I am so nervous for him. He is feeling nervous as well. We have no idea what to expect. Wish us luck on getting through this first day of 10 treatments. ... View more

Darryn was told yesterday that he has to stop the drug trial and have radiation therapy. They have found 2 spots in his brain and 2 in his lung. It's so frightening to be facing this I can only guess how poor Daz is feeling. He is so down I am worried about him. He started taking steroids and is sick and is so tired, I hope these side effects go away soon. Don't have much else to say, just trying to get my head around this and be there for poor Daz. ... View more

My boy friend has upset me so much today I am typing this with tears running down my face. He is at the hospital today and I got all ready to go with him so I can hear what the doctors have to say but he told me he didn't want me to go with him. I was stunned, all I could do was go into my room and close the door. He left without me. I feel he has shut me out completely. I get that he doesn't want to know results of his ct scans ect. but he has to know I want to know. He said he doesn't want to know results because it doesn't change anything. I disagree with that, it changes everything. If they show new tumors it makes a difference, if it shows they have shrunk away to nothing it changes everything. Is it just me that thinks this way? I just don't understand why he wouldn't want to know. He worries about what is going on with his cancer I know he does, anyone who looks at him knows. Knowledge eases the mind I would think. I feel like he has changed so much I hardly know him any more. He doesn't tell me anything about how he feels about having cancer. He just won't talk about it. How can you talk to someone who won't talk back to you. He has said to me a few times now that I have to make some decisions about what I want to do. Maybe he is right about that. I asked him what he means by that and all he says is I shouldn't have to put up with his shit. Is he giving me an out? I don't know and he won't say. I miss our relationship, it has changed so much. ... View more