About nello

nello

You have come to the right place :-). I had non hodgkin lymphoma almost 2 years ago when I was 25. I know how isolating it can be to have cancer as a young person. Feel free to shoot me a message if you want to chat. Sending hugs.

nello

Hi Linda, That must be incredibly frustrating having ongoing issues with short term memory. I hope that peeps at work, and everyone else, have been understanding. I have been back at work for about a year. Initially when I went back I worked once a week. Now I'm working two shifts a week. Unfortunately fatigue is still affecting me. Recovery is a slow process. Like you, I was living a beautiful independent life prior to cancer. Now I live with my parents in the country. I love them but it annoys me no end when they're telling me what to do. I miss my BC (before cancer) life but I know there is no way I can go back to how I used to be. I'm not sure that I would if it were possible anyway. Cancer has changed me in good and bad ways. Mostly good ways I think. If your boyfriend can't stick around when times get tough, I say good riddance to bad rubbish!! I suggest you join Tinder. Not everyone is on there for a "good time". It's fun and easy way to get to know potential suitors. All of my matches know that I've had cancer and they're still talking to me. I heard that brain tumours can affect behaviour. Have you patched things up with your sister in law? Sending virtual hugs Nell (26yo, NHL survivor)

nello

Hey peeps, I was trawling my favourite website today and came across some seriously cute hair turbans. OK, so they're actually shower caps but I think they are pretty enough to wear outside. I know I would. https://www.hardtofind.com.au/88211_dahlia-in-pink-geometric-turban-style-shower-cap

nello

The Cancer Council explains it better than I could. Here is the link: http://www.cancercouncil.com.au/14670/b1000/palliative-care-41/what-is-palliative-care/?pp=74469&cc=7869&&ct=35 xx

nello

Some people prefer the term 'supportive care'. Not only is it about pain management but also managing nausea, vomiting and any other discomfort the patient is suffering from. In the later stages it also involves assisting with showering/washing and pressure area care (when the patient can no longer turn themselves). Basically it's about keeping the patient as comfortable as possible. Most people believe this care is only provided in a hospital but there are actually a few other options out there such as hospices and your own home. Wishing you all the best.

nello

All clear! HOORAY!! I am so excited for the adventures of 2015 and beyond. Next check up in 6 months. 🙂 🙂 🙂

nello

I was treated for anaplastic large cell non-Hodgkin lymphoma about half way through 2013. I endured 6 cycles of CHOP. Nausea and vomiting were a huge issue. I did get good control once I was on the right antiemetics but I was still sick on chemo days. It was like having a terrible hangover but I remembered what I did the night before. Haha. I have a 12 month check up in 3 days time. I've never felt so nervous/anxious in my life. My stomach is tied up in knots, my bowel motions have been weird, I've been having aches and pains in random places in my body (it likes to rotate!) and feeling more tired than usual. I've also had a cough that has been hanging around longer than it should. These things make me think that the cancer has come back. I tell myself not to over analyse but I just can't help it. Prior to my diagnosis I was having recurring dreams that forewarned me that something really bad was going to happen to me. I haven't had any of these dreams lately so I'll take that as a good sign. I've been keeping my mind occupied with baking, exercise and meditation which have helped a lot. I am hoping and praying that I get the all clear...

nello

This was a brilliant read!

nello

I have a 12 month check up on Feb 9th. I am starting to feel a bit nervous - doubts and 'what ifs' keep popping into my head. I think this is a pretty common experience. If you're crazy, then I'm crazy too. Haha. My policy is not to worry about things beyond my control (ie recurrence of cancer) but sometimes it's impossible. I think meditation is great for destressing. Activities that keep you distracted like watching movies, exercise and stuff like that are good too. Fingers crossed to us!!

nello

It sounds like what you are describing could be peripheral neuropathy - one of the many side effects of chemo. I suggest that you or your Mum have a chat with her dr about it as she may need some changes made to her treatment.

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