February 2020
Hi Bill I read in the facebook head and neck site that the magic mouthwash recipe was floating around in Utube. You might also want to check into different like recipes to find the one that best works for you. Regards, Joe
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February 2020
2 Kudos
Hi Sch... I couldn't have said it better...what I'm finding (now that I've gone pretty much Alternative in my approach to cancer and treatment side effects) is that I'm really enjoying the challenge as much as the work involve researching. There's still the bad days and the not so enjoyable dead ends (my God looks like you can't chew gum without experiencing a side effect sometimes!) But all in all winning some little battles, like getting my face back from lymphoedema and now overcoming the fibrosis of the neck make life...exciting, once again. Thanks for the input, Mate. I'm hoping wherever this road leads will help others. By the way there's a couple of real cool Head and Neck sites in fb where your experience will make othe peoples struggle easier. Cheers, Joe
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February 2020
7 Kudos
"New Me" is unacceptable
Yes I do take this "new Me" crap personally. So I failed to do my research and pretty much laid on my back bared my neck and allowed others to take charge of treating my cancer.
Hell, at 62 I'd lived a good full life and didn't particularly care if death was at hand. It's a New Yorker Thing from my youth I think.
But now I'm facing whatever the rest of my life is with week after week of Side Effects "They" glossed over or sometimes simply "neglected" to mention.
Let's be real-using the term THEY is an excuse for ME not having done my research and taken a proactive stance on a treatment that could redefine the rest of my life!
I now realize that the "rest of my life" might be a long time and that I don't care to be a "New Me". This Woody Neck, lack of stamina, paranoia (where any cough, any ache, any weakness sets off "CANCER! CANCER!" Alarms) is not the Joe I will accept.
So I've found some alternative way to fight the returned cancer. Will it work? I know Radiation/Chemo didn't. And the side effects-the inability to swallow, Aspirating and accompanying lung issues, lymphoedema, fibrosis, muscular atrophy and blah blah is too stiff a price to pay. But I'm slowly beating each.
So yeah, I want the Old Me back.
So far I am winning. The Swallowing battles. The lymphoedema battle (funny I never thought myself as particularly handsome-but a sight better than the Half Moon faced stranger I grew tired of seeing in the mirror!). The Inability to Gain Weight issue. The fatigue issue and its accompanying Lack of Motivation brother (reason why I won't touch any Hemp oil products for pain). And, Oh, did I mention pain? Thank God I found a way to beat ED just before going into Chemo/Radio Alley
I'm winning by researching each little side effect and trying what might work until I come across something that does. I'm winning because in the worse of times it hasn't been bad enough to run to the hospital and signed over another piece of my mortgage.
I'm winning because each day I look and feel a little better ...sure, a little older and a bit more worn, perhaps, and yes there's Good Days and Bad Days-but I've taken control of defining Me...not a "New Me" but the Best Me I'm capable of becoming.
Do your research. Be the Best You you can be.
Cheers, Joe.
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February 2020
Bill- The peroxide I get is 3% but I think 7% is still being sold. Yah did mine straight but kept a cup with water/baking soda rinse handy after first try. My first salivary began to work more consistently right around the 4th month...and another came online a couple of months later. I think now three sets are on line (or three locations). Cancer was on right side so that's still fried. I still get RoadKill breath and Desert Dry throat at night but not as often. I'd dilute the peroxide if you're still having mouth sore issues. 9 months later the Sore Throat is still with me but no longer affects my eating (though the lympho swelling plays Hell with swallowing anything stringy-as in meat-or not properly lubricated. Pills are really touch and go and I've pretty much given up all but garlic pills and my nightly Motrin. I do believe that the peroxide actually made the sores and the throat ulcerations get better... Oh yeah-I can actually drink a beer with dinner now. A far cry from my gallon a day precancer but not complaining. ... Cheers, Joe
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February 2020
Bill- That 4 months out super desert mouth an Roadkill Breath did ring a bell for me. According to my notes I went into a desperate streak abd decided to rinse and gargle with 3percent hidrogen peroxide. Burned like Hell at first but did alleviate the dryness, Road Kill and Ropey Alley problems till my salivaries began to kick back in. Hope this helps. Cheers, Joe
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February 2020
Hey Mozz- Thanks for the unput about pills getting stuck. I'm 9 months out now and through seriously agressive exercises (google lymph exercises) and grueling upper body calisthenics...i seem to have reduced the neck swelling-and gotten the face recognisable again. I also use a tincture called Red Root which does seem to help unclog some of the lymph backup (every other week for 3 days, max 20 drops a day for me). The face and neck swelling was pretty bad so I think the regiment gelps that end. I think the jury is out on the swallowing end of it...but hell, I can actually enjoy a beer once in a while again... Cheers, Joe
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February 2020
1 Kudo
Sch- To answer your questions- aside from the Joe Tippens protocol, my lympho program is an amalgamation of established lympho massage techniques, swallowing exercises, upper body calisthenics (to promote circulation) and two days using Red Root tincture believed to help detox the lymph nodes. I seem to max out at 10 drops of red root twice per day for two days...more seems to overload my liver. Hope this helps. Joe
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February 2020
1 Kudo
Sch- Hi. Actually my insurance ran out just after last treatment on June 2019. A trucking colleage emailed me about Joe Tippens cancer protocol and after researching fenbendazole I've been using that protocol. The main struggle really has been with lymphoedema of the face and neck...and that's improving. Still working on it. Sadly, I have pretty much turned away from conventional medicine. I will continue to share my status. Cheers, Joe
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February 2020
2 Kudos
Hi all- Happy to report that nine months out of treatment I seem to have gotten the Face and Neck lymphoedema controlled using the lympho massage, swallowing exercises, upper body high repetition exercises and judicial use of red root lymph detox. My face is finally coming back. Fatigue is a thing of the past but I have made no progress gaining back those 22 lbs...quite probably due to having developed swallowing issues...which I'm still muddling through to defeat. In all, looks like there's a life to enjoy and conquer after Chemo and Rad. Cheers, Joe
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January 2020
Thank you, Bill. Appreciate your tips and, maybe it's the state of medical care in the Good old USA where the business dictates to many in the medical field to stick to just the job description... I'll take looking into working with a specialist into serious consideration. Cheers from Arizona
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