About sch

sch

Hi, Sorry, just realised that it's been two weeks since, but I haven't had much of a chance lately to respond to you. How are you going? How are your children? How old are they? Sorry I don't have any experience with this personally. What sort of treatment (if any) have you been advised to have? What sort of effect will this diagnosis have on you? All the best, s

sch

Good on you Paul. All the best for you and your family. I hope you get that promotion mate. -s

sch

Hi John, As far as peoples experiences with lenvatinib go, according to wikipedia, lenvatinib was only approved for use 5 or 6 years ago, so that is quite recent in the scheme of things. I have no idea how many have had it, but I guess it's relatively recent use for the treatment of thyroid cancer I guess would limit how many people have used it so far. You're right about the community. We might not have had your treatment and your cancer, but we can certainly relate still. Look forward to hearing more about your treatment. -sch PS. How good was that bacon sandwich??

sch

I was sitting down and reading the paper and having coffee as I like to do on a Sunday morning. It's my first day off for the week and I like to sit down and relax. No rushing around and no kids to organise to get off to school. It's my only day of the week where I'm not rushing around. While reading, I read this article. https://www.abc.net.au/everyday/changed-ambition-after-kids/100044446 While I'm reading it, I'm thinking "pfft, you ain't seen nothing". But then of course, a curve ball to one person is not to another. It depends on the size of the challenges we've had previously in life. Which got me thinking. How did the ambitions of other people with cancer change? Did you find yourself more ambitious than you were before? Did you find that you didn't want sweat the small stuff any longer? Was work no longer a priority? If work is no longer a priority, what is? Perhaps you are busy with treatment? Too busy sky diving? Maybe you've committed yourself to some big crazy arsed walk. (yes, looking at you @CaptainAustrali ) How have your priorities changed? It would be great to hear from others how their lives and priorities have changed outside of just dealing with treatment. -s

sch

Hi John58, Sorry, but I don't have any personal experience with Lenvatinib or thryroid cancer, but the cancer council does have a booklet on thyroid cancer. (if you haven't already seen it) https://www.cancer.org.au/assets/pdf/understanding-thyroid-cancer-booklet How are you feeling? How are you going with side effects? When is your next check up? Maybe this site might be of some help as fas as side effects are going. https://chemocare.com/chemotherapy/drug-info/lenvatinib.aspx

sch

Hi Reenie, Welcome aboard! What sort of treatment have you already had and what treatment are you having now? I was the same age when diagnosed and fit also, although I also had 2 young children. I had surgery first (because of the bowel obstruction) followed by chemo. It took me a couple of months to recover from surgery and then I had 6 months of chemo. As far as effects go, I found that surgery effected me most straight after surgery (obviously), but then I improved and got better. Chemo started not effecting my very much, but the further the treatment went on the worse the effects got. The general advise (and also mine from personal experience) is to stay as active as you can. This might differ for you depending on what surgery you might have had. . Groove? Walk as much as you can. It will help with the side effects of the treatment. I had FOLFOX (chemo) and I remained working full time through out, but for the last 3 months, after getting hooked up, I tended to go home and sleep because I just couldn't stay awake. If you like, tell me a bit more about yourself and your treatment and how you are going. -s

sch

Hi Dee58, I'm sorry to hear about your cancer and the effect that it is having on your sense of taste. I didn't have those symptoms from my chemo (I had a difference cancer/chemo), but I had different issues. My chemo went on for 6 months and effected my diet in other ways. I also noticed that there is now a head and neck peer support group. https://onlinecommunity.cancercouncil.com.au/t5/Head-Neck-Cancer-Peer-Support/gp-p/headandneck?utm_source=site&utm_medium=display&utm_campaign=nsw_ccoc&utm_content=groups Maybe you can find more specific support in there. Thinking of you. -s

sch

Hi Rog, I am sorry to hear about your difficulties in convincing your GP there is something that needs following up on. You are not alone here. A quick look through the posts here will give you many examples of this. I would seek a second opinion, although you might have limited options if you are in a remote area. Perhaps you could try calling the Cancer Council support helpline. https://www.cancercouncil.com.au/get-support/coping-with-cancer/cancer-helpline/ Good luck and let us all know how you go. -s

sch

Hi Paul, Welcome to the forum. The great thing about being here is reading all the stories from such a diverse range of people and a diverse range of experiences. I'm sorry to hear about your cancer and your ongoing uncertanties around this. Noone ever really knows until the results are in, and even when the results are in and even if you do have more cancer, then it's certainly not the end of your fight. It's just the start mate. The unknown is very scary, so my advise to you would be to harness this fear and channel it productively into your energy in fighting this. I always try to prepare myself for the worse and if it's better, then that's a pleasant surprise. All the best and please keep us updated. -s

sch

https://kapara.rdbk.com.au/landers/7d97c8.html You might need to register if you haven't already. -S

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