pay the money and get it done asap. The longer it's there, the more chance it will spread. ... View more

@Freddy123    They gave me boxes of them a month or so into treatment.  I think they only give them out to people with feeding tubes.  They do come with a straw though so they must be for drinking too......and they are yummy.   Have no idea where to get them,  that was the first time and last time I ever saw or heard of them.   I have a feeling nestles make them for hospital use only.  That's like the pink lady oral solution.  The gave me scripts for it but the only place I could fill them was the hospital chemist. ... View more

@bodymycin    Just go and have an oral examination every once in a while and apart from that forget about it and get on with your life.  That's what I am doing and I'm an ex smoker or 42 years who actually has had oral cancer which spread to advanced stage right through neck.  This particular cancer has a high rate of recurrence.  But what can I do......it is what it is........the future is uncertain.   It could come back next week, next year.....5 years time.....or never.   Only time will tell........so live well and be happy, for tomorrow we die.   The last part of that will be true one day no matter what you do or don't do.    ... View more

I knew a guy with that.  He was a little weird,  but he had his own place and worked and looked after himself.  Has a great deal of trouble socializing......has no interest it either......he's aware of what he has and has tried hard to learn to mimic  "normal" people to fit in.   He's very smart....in IT and was earning six figures in the job he had last time I saw him.   I don't suppose you have any hopes of prince charming coming along and looking after her.   It's a tough one.  I suppose you just have to try and include her in what your doing and teach her to be able to look after herself and develop some relationships with people as best she can.    You have more probs then I, that is for sure.   You're making me feel fortunate.     ... View more

Yes, you said she is autistic.  How bad is that? ... View more

@tisme    Have you tried CBT oil for the arthritis?   I hear it's very good for that.   Does your daughter help you out much?   Too bad you don't live around the corner......I have a treadmill I'm getting rid of.   Beware of steriod anti inflamatories  for arthritis.  They will make you put weight on and store fluid.   You have obstacles don't you.  Guess you have to just work on minimizing each one and then get some happiness in your life via friends and activities you enjoy.    That's the key to a lot of it......distraction and  enjoying life in spite of everything.  My friend who is dying of liver cancer.....I was just talking to him on phone.....he's not scared at all.......he's totally at peace with it......and in spite of his condition......he went motobike riding with a group to Lawn yesterday......last week he was parasailing........And he's taking skydiving training this week in prep for his first jump.   He's living life to the max..... and he just says......I'm dying.....so what.....things will just go back to how they were before I was born......until then.....lets party.   His attitude is amazing.   I don't know how he does it.....but I'm learning from him ... View more

And I assume you're in your late 50s since your daughter is 37yo.   So 5'7"  late 50s  75kgs.   That's pretty good.  Can't see why a dietitian would want you to eat more.  And that's what I mean.     ... View more

@tisme    How tall are you? ... View more

@tisme    Yeah I had one of those annoying dietitians too.  In the end I told them to bugger off.  I don't want to put weight on.  I had high blood pressure before I lost weight.  I don't have that anymore.   If I listened to them I would be back to being fat and have high blood pressure and get puffed climbing a few flights of stairs.   Those idiots would be happy until I was back tot eh weight I was before I started treatment.   Put it this way..........I'm 5'11".  I weighed 115kgs before treatment.  I bottomed out at 85kgs at my lightest......with almost a six pack.   I'm 93kgs now,  feel a lot better, am fitter,  no high blood pressure, and I look fit, strong,  and healthy.   If I had of lost the weight I lost without chemo and radiation treatment they would be saying......fantastic......you will be much fitter and healthier......but because I was recovering from treatment they want me to put all the weight back on.......madness.   I can understand them being like that with someone who was normal weight and went drastically underweight, but for you and I who had kilos to spare it's actually no problem having lost a lot of weight.   I consider it the one positive thing about the treatment........and I aint giving it up lol  ... View more

@tisme    Ok, so you are putting on half a kilo per week.  Look up how many kilojoules are in half a kilo of fat.  That's how many kilojoules you either half it cut from diet per week, or burn up from activity.....without adding any more by eating that pack of choc biscuits in your cupboard......you know the one  🙂   It's not surprising that I started putting weight back on when I think about it.  I had massive radiation to neck, throat, mouth......taste went,  everything tasted like shit......and radiation burned up everything and was on a feeding tube into my stomach.  I could eat soft stuff a couple weeks after treatment....but it tasted like crap for ages.   Once my taste returned I wanted to eat everything in sight.  And I'd been used to sitting around doing nothing for ages......because the chemo made me fatigued and tired.   So it was hard to get moving again.   I done exactly what i just told you......looked at the weight gain over the weeks......and worked out how much more exercise I had to do and how much to cut from what I eat.   I lost 2 kilos......then stayed stable.  Once I got back to working......I found I was able to eat a little more without gaining.   I actually feel better now one year after treatment stopped then I even felt one year before I had cancer.   Weight really does put a drag on you and suck your energy away.  Apparently it is an increased risk factor for cancer too.  That fatty liver thing you mentioned.......apparently that is a risk for primary liver cancer.  I have  a friend who is dying from that right now.   He's not expected to see xmas.   He's exhausted all treatment options and is now on home hospice care.    What do you like to do, or would you like to do.  What activities would you enjoy, swimming,  cycling,  bushwalking?   Think of things that make exercise fun.   xo ... View more