Hi Harker
I am the same really, in that once I was diagnosed I have received exceptional care clinically speaking. Just the peripheral bits that need a tad tidying up, just my opinion of course. I highly doubt the people that have changed my appointments realise that now instead of 400kms I will be travelling 800. Luckily I can drive myself there even though I still get very tired.
I liked the article because it encompasses more than just clinical treatment. I liked the sound of your book?, it is good to explore all options, experiences and or problems.
thanks
Julie
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