Hi @Richard56  Anxiety is something we certainly suffer, and I have had nine surgeries in the last 18months and as I lie on the bed waiting to go to theatre I have suffered meltdowns, the day before hospital is usually full of anxiety. Everyone is different and although my GP has thought anti depressants maybe a good idea I have never gone with any medication, I find my clear muddled head gets me through  My treatments are surgery when tumours that keep growing are cut away and my bladder is dosed up with potions that have come to an end of working,  I have a stent in my ureter and the cancer is lasered at end  thoughts with you always stay strong  ... View more

Hi @Cindi54  so frustrating when that happens and l know the feeling has happened to me as well  my thoughts with you as  with many different cancers you are fighting with ongoing treatments with many side affects you certainly are having a tough time  you certainly are one strong fighting woman  with so much care and compassion for others    ... View more

Hi @Richard56  So sorry your BCG left you not feeling great, I found Panadol was great for me and all I needed  Don’t feel anxious about it, now you have been through a treatment you know what the experience is, so hopefully will be a lot easier for you  good thoughts with you 💖💖 ... View more

Hi @Cindi54    you certainly are having a rotten time with your chemo, I hope they get it right for your well being soon I don’t understand why your doctor says kidney and ureter cancer called bladder cancer as a separate organ, most people with bladder cancer will not get the other two and bladder cancer treated so differently, I don’t really know but some information does say some doctors will say they are connected, I know my doctor doesn’t  I hope you feel better in the next week  💖😘💖😘 ... View more

Hi @Cindi54  I know I don’t have options other than the major surgery as once cancer is in my body options then are chemo, pain and side affects  professor has said we need a good talk, so I guess this will happen on Wednesday  I don’t think about it  at all really and I’m even thankful that at night my brain has tuned off lately  although my cancer is serious I do not go through the trauma of side  affects and pain like you and so many others do with delays as well  my thoughts always with you 😘😘 ... View more

Hi @Cindi54  I’m  well I see my professor next week but I have not made any decisions on surgeries or treatments. Although my cancer high grade I am totally pain free I take no medications and never have other than Panadol when I’ve needed anything for stent pain. This is the reason very hard to make any decisions as I am well. Although I have had nine  surgeries in 18 months these are to change stent, laser on ureter and biopsies and as I constantly have tumours returning and new ones these are cut away, I am in hospital two nights pain free  with what you and Richard and Greg are going through with after effects is heartbreaking,  although as my professor says my cancer serious and complex I am good which makes decisions hard to make,  life is good      ... View more

Hi @Cindi54  So sorry to hear you are going through a terrible time with your treatments, chemo certainly knocks you around, your strong will gets you going and your great attitude so inspiring  I wish you kindest thoughts with you next treatment  😘😘 ... View more

Hi @greg57  @so sorry to hear of your terrible side effects  I hope you are starting to feel some improvement and are able to rest as comfortably as possibly  three months is a long wait hopefully some results will give some relief to the wait and worry  take care my kindest thoughts with you  ... View more

Hi @Richard56  thank you, it does a lot for our mental health to have some contact and great support from others as we are faced with the worst battles of our lives and you and @Cindi54  are great support  my husband is my great support and comfort and your wonderful partner is your great support as well  and you will both get through these tough days  kindest thought and love with you    ... View more

Hi @Richard56  @I’m so sorry to hear of your terrible setback  BCG  gets your immune system working, so hopefully when you start  your treatments you  have a great result, my immune system fired up really well although it worked slowly it kept working, so hopefully yours will fire up and help your whole body.  I have been very fortunate that I have never had any medication other than Panadol, and although I go through times of simply not being able to sleep I have refused sleeping tablets but I do manage  to get in a few hours, I don’t stay in bed I get up and I do some jigsaw puzzle and amazing how the time flies by, I do sleep a lot better now    my kind thoughts with and your partner   stay strong and think good thought always as things will improve  Jennifer xx ... View more